The Changing Lives of Older Couples Study

Wave II Widow Follow-up Survey

CODEBOOK

 

                                   Facesheet

                                      

 

VAR #

 

  4001      FS.    Seq.#/CASE ID                                          

 

 

 

  4002      FS.    Respondent # -- 1st 4 digits (CLOC ID#)                

 

 

 

  4003      FS.    Respondent # -- last 2 digits, preprinted              

 

 

 

[V4004:  BUILD 6-digit Respondent ID# (V4002+V4003)]

 

 

                                                              Rev. 10/24/91

  4005      FS.    Result Code                                            

 

01.  Complete I'v

03.  Complete Telephone I'v

05.  Partial I'v

07.  Partial Telephone I'v

 

 

 

 4006       FS.    Respondent "history":  2 digits                        

 

Code 1st 2-digit # precoded on Facesheet

 

 

 

  4007      FS.    ID# of person to whom R is matched                     

 

Code 1st 4 digits of ID# precoded on Facesheet

 

 

 

  4008      FS.    ID# of person to whom R is matched                     

 

Code last 2 digits of ID# precoded on Facesheet

 

 

 

[V4009:  BUILD 6-digit ID# (V4007+V4008)]

 


 4010       FS.    "History" of person to whom R is matched:  2 digits    

 

Code last 2-digit # precoded on Facesheet

 

 

 

 4011       FS1.   INTERVIEWER's ID# (4 digits from label)                

 

 

 

 4012       FS2.   Interview No.: (2 digits from box)                     

 

99.  NA

 

 

 

 4013       FS3.   Date of Interview--MONTH                               

 

Code MONTH (01-12)

 

 

 

 4014       FS3.   Date of Interview--DAY                                 

 

Code DAY (01-31)

 

 

 

 4015       FS3.   Date of Interview--YEAR                                

 

Code 4-digit YEAR (1988-1995)

 

 

 

 4016       FS4.   Length of Interview                                    

 

Code # of MINS (001-240)

 

 


 

 

SECTION A:  HOUSEHOLD LISTING AND CIRCUMSTANCES OF THE DEATH

 

 

A1.    First, I need to list all the people who live here.  I don't need names, just the age, sex and relationship to you for each person.  Let's start with you.  How old are you?

 

Now I need the age, sex and relationship to you of any other adults and children who live here.

 

4101        A1.    SUMMARY # Persons in HOUSEHOLD                         

┌──────────────┐

0 in 4105-4131├─────    01.  One            ┌──────────────┐

└──────────────┘                                            Code # persons

┌──────────────┐                                            listed in grid

0 in 4108-4131├─────02.  Two                               (01-20).     

└──────────────┘                                                      └──────────────┘

┌──────────────┐

0 in 4111-4131├─────03.  Three

└──────────────┘

┌──────────────┐

0 in 4114-4131├─────04.  Four

└──────────────┘

┌──────────────┐

0 in 4117-4131├─────05.  Five

└──────────────┘

┌──────────────┐

0 in 4120-4131├─────06.  Six

└──────────────┘

┌──────────────┐

0 in 4123-4131├─────07.  Seven

└──────────────┘

┌──────────────┐

0 in 4126-4131├─────08.  Eight

└──────────────┘

┌──────────────┐

0 in 4129-4131├─────09.  Nine

└──────────────┘

  10.  Ten

    .

    .

    .

  20.  Twenty

 

  99.  NA


4102(#1)    A1(a). MEMBERS OF THE HOUSEHOLD BY RELATIONSHIP TO RESPONDENT 

4105(#2)

4108(#3)           Partner/Spouse

4111(#4)          

4114(#5)           01.   RESPONDENT

4117(#6)           02.   Spouse of R

4120(#7)           03.   Partner of R

4123(#8)

4126(#9)           Child

4129(#10)

10.   Child(ren), NA sex (incl. foster child/stepchild)

11.   Son (incl. adopted)

12.   Daughter (incl. adopted)

13.   Stepson (incl. partner's son)

14.   Stepdaughter (incl. partner's daughter)

15.   Son-in-law (incl. daughter's partner)

16.   Daughter-in-law (incl. son's partner)

17.   Foster son

18.   Foster daughter

 

Parent/Grandparent

 

20.   Parent, NA sex ("parents" code 21, 22)

21.   Father (incl. adoptive father)

22.   Mother (incl. adoptive mother)

23.   Stepfather

24.   Stepmother

25.   Father-in-law (incl. partner's father); ("my in-laws" code 25 and 26)

26.   Mother-in-law (incl. partner's mother)

27.   Grandparent; great-grandparent, NA sex

28.   Grandfather; great-grandfather

29.   Grandmother; great-grandmother

 

Sibling/Sibling-in-law

 

31.   Brother

32.   Sister

33.   Stepbrother

34.   Stepsister

35.   Brother-in-law

36.   Sister-in-law


4102(#1)    A1(a). Continued                                              

4105(#2)

4108(#3)           Other Relatives

4111(#4)          

4114(#5)           40.   Grandchild/great grandchild, NA sex

4117(#6)           41.   Grandson; great grandson

4120(#7)           42.   Granddaughter; great granddaughter

4123(#8)           43.   Nephew

4126(#9)           44.   Niece

4129(#10)          45.   Uncle; great-uncle

46.   Aunt; great-aunt

47.   Cousin

48.   Other "in-laws"

┌─────────┐

Make Card├────────49.   Other relative

└─────────┘

 

 

Unrelated Persons

 

62.   Housemate/roommate

63.   Household employee; live-in sitter; housekeeper

64.   Friend

66.   Person related to R's partner (exc. child or parent)

67.   Roomer; boarder

 

 

 

 

 

 

┌─────────┐

Make Card├────────97.   Other unrelated person

└─────────┘

98.   DK

99.   NA

 

00.   Inap, no further persons in HU

 

 

4103(#1)    A1(b). SEX                                                    

4106(#2)

4109(#3)           1.  Male

4112(#4)           2.  Female

4115(#5)

4118(#6)           9.  NA

4121(#7)

4124(#8)           0.  Inap, no further persons listed

4127(#9)

4130(#10)

 

 

 

 

 

 

 

 

 


 

4104(#1)    A1(c). AGE                                                    

4107(#2)

4110(#3)           Code AGE (01-97)

4113(#4)

4116(#5)           01.  One year or less

4119(#6)

4122(#7)           97.  97 years or more

4125(#8)

4128(#9)           98.  DK

4131(#10)          99.  NA

 

00.  Inap, no further persons listed

 

 

 

4132        A1a.   INTERVIEWER CHECKPOINT                                 

┌────────────────┐

0 in 4133,      │────1.  R WAS INTERVIEWED AT WAVE I

4201-4241, 4301-

4344, 4401-4406    2.  ALL OTHERS

└────────────────┘

 

 

4133        A2.    I'd like to begin by asking you about the circumstances of your (husband's/wife's) death.  How old was your (husband/

wife) when (he/she) died?                              

 

Code YEARS (40-97)

 

97.  97 years or more

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132

 


 

 

SECTION A:  HOUSEHOLD LISTING AND CIRCUMSTANCES OF THE DEATH

 

                                      

VAR #

 

4201        A3.    What was the cause of (his/her) death?  (IF ACCIDENT,

4202               PROBE:  What kind of accident? AND OBTAIN BRIEF

4203               DESCRIPTION OF CIRCUMSTANCES)                          

 

Use HEALTH CONDITION MASTER CODE

 

000.  Inap, 1 in 4132; no further mention

 

 

 

4204        A4.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

0 in 4205-4241├─────1.  CAUSE OF DEATH WAS ACCIDENT, MURDER OR SUICIDE

└──────────────┘

┌──────────────┐

0 in 4301-4344├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 4132

 

 

 

4205        A5.    How long before your (husband's/wife's) death did you realize that (he/she) was going to die?  (RECORD NUMBER OR

MARK BOX)                                              

 

Code # (01-60), except:

┌──────────────┐

0 in 4206-4207├─────96.  NO WARNING/MINUTES

└──────────────┘

98.  DK

99.  NA

 

00.  Inap, 1 in 4132 or 4204

 

 

 

4206        A5.    TIME UNIT                                              

 

1.  HOURS

2.  DAYS

3.  WEEKS

4.  MONTHS

5.  YEARS

 

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 96 in 4205

 

 

 

 


 

 

4207        A6.    Was the cause of (his/her) death an ongoing condition that you knew about before, or did you only learn about it for

the first time shortly before (he/she) died?           

┌─────────┐

0 in 4208├─────────1.  ONGOING

└─────────┘

 2.  FIRST TIME

 

 8.  DK

 9.  NA

 

 0.  Inap, 1 in 4132 or 4204; 96 in 4205

 

 

 

4208        A7.    Did (he/she) have any serious ongoing health problems?

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 1 in 4207

 

 

 

4209        A8.    Was your (husband/wife) aware that (he/she) was dying?

 

  1.  YES

┌──────────────┐

0 in 4210-4212├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132 or 4204

 

 

 

4210        A9.    Did (he/she) seem to be at peace with the idea of dying?

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 5, 8-9 in 4209

 

 

 

 

 

 

 

 

 


 

 

4211        A10.   Did you and your (husband/wife) talk about the fact that

(he/she) might die?                                    

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 5, 8-9 in 4209

 

 

 

4212        A11.   Did you and (he/she) talk about how you would deal with

being on your own once (he/she) was gone?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 5, 8-9 in 4209

 

 

 

4213        A12.   INTERVIEWER CHECKPOINT                  

 

  1.  SPOUSE HAD (SERIOUS) ONGOING CONDITION

┌──────────────┐

0 in 4214-4224├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 4132 or 4204

 

 

 

4214        A13.   Did you yourself have to provide physical care to your

(husband/wife) in the 6 months before (he/she) died?   

 

  1.  YES

┌──────────────┐

0 in 4215-4224├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132 or 4204; 2 in 4213

 

 

 

 

 

 

 

 

 


 

 

 

4215        A13a.  During the last 6 months of (his/her) life, about how many hours a week did you spend providing physical care for

your (husband/wife)?                                   

 

Code HOURS (01-95)

 

95.  95 hours or more

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 

4216        A13b.  For how many weeks, months, or years did you provide such

care?--WEEKS                                           

 

Code WEEKS (00-95)

 

98.   DK

99.   NA

 

00.   WEEKS not given; Inap, 1 in 4132 or 4204; 2 in 4213;

                         5, 8-9 in 4214

 

 

 

4217        A13b.  For how many weeks, months, or years did you provide such

care?--MONTHS                                          

 

Code MONTHS (00-60)

 

98.   DK

99.   NA

 

00.   MONTHS not given; Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 

4218        A13b.  For how many weeks, months, or years did you provide such

care?--YEARS                                           

 

Code YEARS (00-20)

 

98.   DK

99.   NA

 

00.   YEARS not given; Inap, 1 in 4132 or 4204; 2 in 4213;

                         5, 8-9 in 4214

 

 

 


 

 

 

 

 

4219        A13c.  What kind of physical care did you provide?            

4220

4221               MEDICAL

 

11.   Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines

 

 

PERSONAL NEEDS (exc. 11)

 

21.   Elimination; helped with/took to bathroom; cleaned up after

22.   Bathing; gave baths; helped with bathing

23.   Feeding; fed spouse, prepared meals, etc.

24.   Help move around house; lifting; exercise/walking

25.   Getting dressed

 

 

 

 

29.   Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.

 

 

 

 

 

4219        A13c.  Continued                                              

4220

4221               31.   Transportation; took spouse to doctor or other appointment; "drove him everywhere"

 

 

 

┌────────────┐

Low Priority├─────95.   "Everything"; "complete care"

└────────────┘

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214;

      no further mention

 

 

 

 

 

 

 

 

 


 

 

 

 

 

4222        A14.   (RB, P. 1)  During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care?  Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not

at all stressful?                                      

 

1.  VERY STRESSFUL

2.  QUITE STRESSFUL

3.  SOMEWHAT STRESSFUL

4.  NOT TOO STRESSFUL

5.  NOT AT ALL STRESSFUL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 

4223        A15.   How much did caring for your (husband/wife) while (he/she) was ill keep you from carrying out other responsibilities in your life?  Would you say a great deal, somewhat, a

little, or not at all?                                 

 

1.  A GREAT DEAL

2.  SOMEWHAT

3.  A LITTLE

4.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 

4224        A16.   (RB, P. 2)  Please tell me how true the following statement is.  My (husband's/wife's) illness was physically painful for (him/her).  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 


 

 

 

 

 

 

A17.   (RB, [STILL ON] P. 2)  Please tell me how true each of the following statements is in the case of your (husband/wife).

 

 

 

4225        A17a.  In the weeks before (his/her) death, things between my      (husband/wife) and me were going well.  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        USE SAME CODE 

3.  A LITTLE TRUE                        FOR V4226-4228

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204

 

 

 

 

4226        A17b.  My (husband/wife) lived a full life.                   

 

 

 

4227        A17c.  During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.   

 

 

4228        A17d.  I believe that my (husband/wife) is now in a better place

than (he/she) was on this earth.                       

 

 

4229        A18.   Were you there with your (husband/wife) at the moment when

(he/she) died?                                         

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204

 

 

 

 

 


 

 

 

 

 

 

 

 

 

 

4230        A19.   (RB, P. 3) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death?  Would you say no, not at all; yes, a little; yes, somewhat; or yes,

a great deal?                                          

┌──────────────┐

0 in 4231-4232├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132 or 4204

 

 

 

                                                               Rev. 11/2/90

4231        A19a.  What did (he/she) do that may have contributed to

4232               (his/her) death?                                       

 

11.   Smoking

12.   Alcohol/drug use

13.   Improper eating habits; wouldn't eat right foods/ follow diet

14.   Lack of exercise; just sat around

 

 

 

 

19.   Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.

 

 

21.   Emotional stress (self-induced or caused by others)

22.   Physical stress/overwork; worked too hard; "pushed himself too much"

23.   Employment situation--n.e.c.; dangerous/unhealthy working conditions

 

 

 

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 


00.   Inap, 1 in 4132 or 4204; 1, 8-9 in 4230; no further

      mention

 

 

 

 

 

 

 

 

 

 

4233        A20.   (RB, STILL ON P. 3) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death?  (Would you say no, not at all; yes, a

little; yes, somewhat; or yes, a great deal?)          

┌──────────────┐

0 in 4234-4241├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

              

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132 or 4204

 

 

 

4234(#1)    A20a.  Who do you feel may have contributed to the death?     

4238(#2)

Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

0 in 4239-4241├─────00.  No person #2 listed; Inap, 1 in 4132 or 4204; 1, 8-9

└──────────────┘       in 4233

 

 

 

                                                               Rev. 11/2/90

4235(#1)    A20b.  What did (PERSON #1) do?   

4236(#1)    A20d.  What did (PERSON #2) do?                               

 

4239(#2)

4240(#2)

 

 

21.   Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)

 

23.   Employment situation; dangerous/unhealthy working conditions

 

 

 

41.   Doctor/hospital incompetent/negligent/unhelpful

 

 


91.   Person shot/assaulted spouse (incl. in war)

 

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 4132 or 4204; 1, 8-9 in 4233; 00 in 4238;

      no further mention

 

 

 

4237(#1)    A20c.  (RB, STILL ON P. 3) Do you blame (PERSON #1) for your

4241(#2)           (husband's/wife's) death?

A20e.  (RB, STILL ON P. 3) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)                       

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOMEWHAT

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 1, 8-9 in 4233; 00 in 4238

 


 

 

SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCES OF THE DEATH

 

 

VAR #

 

┌─────────────────────────────────────────┐

SPOUSE DIED BY ACCIDENT/ MURDER/ SUICIDE

└─────────────────────────────────────────┘

 

4301        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--MONTH                                

 

Code MONTH (01-12)

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132; 2 in 4204

 

 

 

4302        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--DAY                                  

 

Code DAY (01-31)

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132; 2 in 4204

 

 

 

4303        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--YEAR                                 

 

Code YEAR (1987-1995)

 

9998.  DK

9999.  NA

 

0000.  Inap, 1 in 4132; 2 in 4204

 

 

 

4304        A22.   INTERVIEWER CHECKPOINT                  

 

  1.  CAUSE WAS ACCIDENT

┌──────────────┐

0 in 4305-4307├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 4132; 2 in 4204

 

 

 

 


 

 

4305        A22a.  Was anyone else involved in the accident?              

 

  1.  YES

┌──────────────┐

0 in 4306-4307├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204 or 4304

 

 

 

4306        A22b.  Who was that?  I don't need a specific name.           

4307

Use RELATIONSHIP MASTER CODE

 

00.   Inap, 1 in 4132; 2 in 4204 or 4304; 5, 8-9 in 4305;                    no further mention

 

 

 

4308        A23.   Was (he/she) still alive when you first heard about the

incident?                                              

 

  1.  YES

┌──────────────┐

0 in 4309-4314├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204

 

 

 

4309        A23a.  How long after that did (he/she) die?   

 

Code # (01-60), except:

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308

 

 

 

4310        A23a.  TIME UNIT                                              

 

1.  HOURS

2.  DAYS

3.  WEEKS

4.  MONTHS

 

9.  NA


0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308

 

 

 

 

4311        A24.   Was your (husband/wife) aware that (he/she) was dying? 

 

  1.  YES

┌──────────────┐

0 in 4312-4314├─────5.  NO

└──────────────┤

               ├─────8.  DON'T KNOW

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308

 

 

 

4312        A25.   Did (he/she) seem to be at peace with dying?           

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308 or 4311

 

 

 

4313        A26.   Did you and your (husband/wife) talk about the fact that

(he/she) might die?                                    

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308 or 4311

 

 

 

4314        A27.   Did you and (he/she) talk about how you would deal with

being on your own once (he/she) was gone?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308 or 4311

 

 

 

 


 

 

 

 

 

 

 

 

4315        A28.   Before the (accident/murder/suicide) did your (husband/

wife) have any serious ongoing health problems?        

 

  1.  YES

┌──────────────┐

0 in 4316-4326├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204

 

 

 

4316        A29.   In the six months before (he/she) died, did you yourself have to provide physical care to (him/her) because of a

serious ongoing health problem?                        

 

  1.  YES

┌──────────────┐

0 in 4317-4326├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315

 

 

 

4317        A29a.  About how many hours a week did you spend providing physical care for (him/her) during the last six months of

(his/her) life?                                        

 

Code HOURS (01-95)

 

95.  95 hours or more

 

98.  DK

99.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316

 

 

 

4318        A29b.  For how many weeks, months, or years did you provide such

care?--WEEKS                                           

 

Code WEEKS (00-95)

 


98.   DK

99.   NA

 

00.   WEEKS not given; Inap, 1 in 4132; 2 in 4204; 5, 8-9

in 4315 or 4316

 

 

 

 

 

 

 

4319        A29b.  For how many weeks, months, or years did you provide such

care?--MONTHS                                          

 

Code MONTHS (00-60)

 

98.   DK

99.   NA

 

00.   MONTHS not given; Inap, 1 in 4132; 2 in 4204; 5, 8-9

in 4315 or 4316

 

 

 

4320        A29b.  For how many weeks, months, or years did you provide such

care?--YEARS                                           

 

Code YEARS (00-20)

 

98.   DK

99.   NA

 

00.   YEARS not given; Inap, 1 in 4132; 2 in 4204; 5, 8-9

in 4315 or 4316

 

 

 

4321        A29c.  What kind of physical care did you provide?            

4322

4323               MEDICAL

 

11.   Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines

 

 

 

 

 

 

 

 

 

 

PERSONAL NEEDS (exc. 11)

 

21.   Elimination; helped with/took to bathroom; cleaned up after


22.   Bathing; gave baths; helped with bathing

23.   Feeding; fed spouse, prepared meals, etc.

24.   Help move around house; lifting; exercise/walking

25.   Getting dressed

 

 

 

 

29.   Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.


4321        A29c.  Continued                                              

4322

4323               31.   Transportation; took spouse to doctor or other appointment; "drove him everywhere"

 

 

 

 

┌────────────┐

Low Priority├─────95.   "Everything"; "complete care"

└────────────┘

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316;                    no further mention

 

 

 

4324        A30.   (RB, P. 4)  During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care?  Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not

at all stressful?                                      

 

1.  VERY STRESSFUL

2.  QUITE STRESSFUL

3.  SOMEWHAT STRESSFUL

4.  NOT TOO STRESSFUL

5.  NOT AT ALL STRESSFUL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316

 

 

 

4325        A31.   How much did caring for your (husband/wife) during the 6 months before (he/she) died keep you from carrying out other responsibilities in your life?  Would you say

a great deal, somewhat, a little, or not at all?       

 

1.  A GREAT DEAL

2.  SOMEWHAT

3.  A LITTLE

4.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316

 

 

 


 

 

4326        A32.   (RB, P. 5)  Please tell me how true the following statement is.  My (husband's/wife's) condition was physically painful for (him/her).  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316

 

 

 

A33.   (RB, [STILL ON] P. 5)  Please tell me how true each of the following statements is in the case of your (husband/wife).

 

4327        A33a.  In the weeks before (his/her) death, things between my      (husband/wife) and me were going well.  Is this very true,

somewhat, a little, or not true at all?                

                                                                             

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        USE SAME CODE 

3.  A LITTLE TRUE                        FOR V4328-4330

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204

 

 

 

4328        A33b.  My (husband/wife) lived a full life.                   

 

 

4329        A33c.  During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.   

 

 

4330        A33d.  I believe that my (husband/wife) is now in a better place

than (he/she) was on this earth.                       

 

 

 

4331        A34.   INTERVIEWER CHECKPOINT                  

 

1.  CAUSE OF DEATH WAS ACCIDENT OR MURDER

┌──────────────┐

0 in 4332-4334├─────2.  CAUSE WAS SUICIDE


└──────────────┘

0.  Inap, 1 in 4132; 2 in 4204

 

 

 

 

 

 

4332        A35.   (RB, P. 6) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death?  Would you say no, not at all; yes, a little; yes, somewhat; or yes,

a great deal?                                          

┌──────────────┐

0 in 4333-4334├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204 or 4331

 

 

 

 

4333        A35a.  What did (he/she) do that contributed to (his/her) death?

4334

11.   Smoking

12.   Alcohol/drug use

13.   Improper eating habits; wouldn't eat right foods/ follow diet

 

 

 

19.   Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.

 

 

21.   Emotional stress (self-induced or caused by others)

22.   Physical stress/overwork; worked too hard; "pushed himself too much"

23.   Employment situation--n.e.c.; dangerous/unhealthy working conditions

 

 

 

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.  Inap, 1 in 4132; 2 in 4204 or 4331; 1, 8-9 in 4332;                    no further mention

 

 

 

 


4335        A36.   INTERVIEWER CHECKPOINT                  

 

1.  CAUSE OF DEATH WAS ACCIDENT OR SUICIDE

┌──────────────┐

0 in 4336-4344├─────2.  CAUSE OF DEATH WAS MURDER

└──────────────┘

0.  Inap, 1 in 4132; 2 in 4204

 

 

4336        A37.   (RB, STILL ON P. 6) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death?  (Would you say no, not at all; yes, a

little; yes, somewhat; or yes, a great deal?)          

┌──────────────┐

0 in 4337-4344├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204 or 4335

 

 

 

4337(#1)    A37a.  Who do you feel may have contributed to the death?     

4341(#2)

  Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

0 in 4342-4344├─────00.  No person #2 listed; Inap, 1 in 4132; 2 in 4204 or

└──────────────┘          4335;1, 8-9 in 4336

 

 

 

                                                               Rev. 11/2/90

4338(#1)    A37b.  What did (PERSON #1) do?   

4339(#1)    A37d.  What did (PERSON #2) do?                               

 

4342(#2)

4343(#2)           21.   Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)

 

23.   Employment situation; dangerous/unhealthy working conditions

 

 

 

41.   Doctor/hospital incompetent/negligent/unhelpful

 

 

 

 

91.   Person shot/assaulted spouse (incl. in war)

 

┌─────────┐

Make Card├────────97.   Other


└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 4132; 2 in 4204 or 4335; 1, 8-9 in 4336;

      00 in 4341; no further mention

 

 

 

 

 

 

4340(#1)    A37c.  (RB, STILL ON P. 6) Do you blame (PERSON #1) for your

4344(#2)           (husband's/wife's) death?

A37e.  (RB, STILL ON P. 6) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)                       

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOMEWHAT

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204 or 4335; 1, 8-9 in 4336;

    00 in 4341

 

 


 

 

SECTION B:  GRIEF

 

 

VAR #

 

 

4401        B1.    INTERVIEWER CHECKPOINT                                 

 

  1.  SPOUSE HAD SERIOUS ONGOING CONDITION BEFORE (HE/SHE)

    DIED 

┌──────────────┐

0 in 4402-4406├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 4132

 

 

 

B2.    (RB, P. 7) For the next questions, please think about the time when your (husband/wife) was alive but in poor health.

 

4402        B2a.   At any time while your (husband/wife) was still alive, did you ever find that you couldn't get thoughts of (him/her) or (his/her) condition out of your mind even when you wanted to?  Would you say no, never; yes, but rarely; yes,

sometimes; or yes, often?                              

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      USE SAME CODE 

3.  YES, SOMETIMES                       FOR V4403-4406

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4401

 

 

 

4403        B2b.   Did you ever find yourself going over and over what was

happening?                                             

 

 

4404        B2c.   While (he/she) was still living, did you ever find yourself searching to make sense or find some meaning in

your (husband's/wife's) situation?                     

 

 

4405        B2d.   While (he/she) was still alive, did you ever have feelings of grief or sadness over the thought of losing your

(husband/wife)?                                        

 

 


4406        B2e.   Did you ever cry about what was happening to (him/her)?

 

 

 

 

 

B3.    (RB, [STILL ON] P. 7)  Now, I have a list of feelings and emotions that some people still experience many months after the loss of their husband or wife.  Please think about the past month.

 

4407        B3.    During the past month, have you felt afraid of what lies ahead for you? (Would you say no, never; yes, but rarely;

yes, sometimes; or yes, often)?                        

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      USE SAME CODE 

3.  YES, SOMETIMES                       FOR V4408-4429

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

 

 

4408        B4.    Have you felt extremely anxious and unsettled during the

past month?                                            

 

 

4409        B5.    During the past month, have you felt worried about how you

would manage your day-to-day affairs?                  

 

 

4410        B6.    Has life seemed empty?                                 

 

 

4411        B7.    During the past month, did you feel amazed at your

strength?                                              

 

 

4412        B8.    Did you feel you were coping well with the loss of your

(husband/wife)?                                        

 

 

4413        B9.    During the past month, did you feel proud of how well you

were managing?                                         

 

 

4414        B10.   Have you felt as though you were in a state of shock?  

 

 

4415        B11.   During the past month, have you felt as though you


couldn't believe what was happening?                   

 

 

4416        B12.   Have you felt emotionally numb?                        

 

 

4417        B13.   During the past month, have you felt resentful or bitter

about your (husband's/wife's) death?                   

 

 

4418        B14.   Have you felt that the death of your (husband/wife) was

unfair?                                                

 

 

4419        B15.   In the past month, have you felt anger toward God?     

 

 

4420        B16.   Have you felt empty inside, like an important part of you

is missing?                                            

 

 

4421        B17.   In the past month, have you felt that life has lost its

meaning?                                               

 

 

4422        B18.   In the last month, have you had any regrets about anything that happened between you and your (husband/wife) while

(he/she) was still alive?                              

 

 

4423        B19.   Have you felt as though you did all you could have done

for your (husband/wife) before (his/her) death?        

 

 

4424        B20.   During the past month, have you had any regrets about

things you did or failed to do while (he/she) was alive?     

 

 

4425        B21.   In the past month, have you heard a sound that you thought

might be (him/her)?                                    

 

 

4426        B22.   In the past month, have you sensed the presence of your

(husband/wife?)                                        

 

 

4427        B23.   To help you make decisions, have you thought about what

your (husband/wife) would have done?                   

 


4428        B24.   During the past month, have you felt drawn to places and

things that make you feel close to your (husband/wife)?

 

 

4429        B25.   Have you found yourself longing to have (him/her) with

you?                                                   

 

 

 

4430        B26.   (RB, STILL ON P. 7)  People have different reactions to the death of a husband or wife.  During the past month, have you had painful waves of missing your (husband/wife)?  (Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often)?                                        

 

  1.  NO, NEVER

┌──────────────┐

0 in 4431-4432├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               ├─────4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 

 

4431        B26a.  (RB, STILL ON P. 7)  Has it happened in the last 6 months?--(no, never; yes, but rarely; yes, sometimes; or

yes, often)?                                           

 

 1.  NO, NEVER

┌─────────┐

0 in 4432├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          ├─────────4.  YES, OFTEN

         

          ├─────────8.  DK

          └─────────9.  NA

 

0.  Inap, 2-4, 8-9 in 4430

 

 

 

4432        B26b.  (RB, STILL ON P. 7)  At any time since (he/she) died, did you ever have painful waves of missing (him/her)--(no,

never; yes, but rarely; yes, sometimes; or yes, often)?

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 2-4, 8-9 in 4430 or 4431

 


 

4433        B27.   (RB, STILL ON P. 7)  During the past month, have you experienced feelings of intense pain or grief over the loss of your (husband/wife)--(no, never; yes, but rarely;

yes, sometimes; or yes, often)?                        

 

  1.  NO, NEVER

┌──────────────┐

0 in 4434-4435├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               ├─────4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

4434        B27a.  (RB, STILL ON P. 7)  Has it happened in the last 6 months?--(no, never; yes, but rarely; yes, sometimes; or

yes, often)?                                           

 

 1.  NO, NEVER

┌─────────┐

0 in 4435├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          ├─────────4.  YES, OFTEN

         

          ├─────────8.  DK

          └─────────9.  NA

 

0.  Inap, 2-4, 8-9 in 4433

 

 

 

4435        B27b.  (RB, STILL ON P. 7)  At any time since (he/she) died, did you ever experience feelings of intense pain or grief over (his/her) loss--(no,never; yes, but rarely; yes,

sometimes; or yes,often)?                              

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA


0.  Inap, 2-4, 8-9 in 4433 or 4434

 

 

 

4436        B28.   Since your (husband's/wife's) death, have you experienced feelings of grief in response to another loss -- for example, the loss of a friend, a distant relative or a pet

-- that were more intense than you might have expected?

 

  1.  YES

┌──────────────┐

0 in 4437-4438├─────5.  NO

└──────────────┤

               ├─────8.  IF VOLUNTEERED: NOT SURE

               └─────9.  NA

 

 

 

4437        B28a.  How long after your (husband's/wife's) death did that

happen most recently?--MONTHS                          

 

Code MONTHS (01-95), except:

 

98.  DK

99.  NA

 

00.  MONTHS not given; Inap, 5, 8-9 in 4436

 

 

 

4438        B28a.  How long after your (husband's/wife's) death did that

happen most recently?--YEARS                           

 

Code YEARS (01-08), except:

 

98.  DK

99.  NA

 

00.  YEARS not given; Inap, 5, 8-9 in 4436

 


 

 

SECTION C:  PARENTING

                                      

 

VAR #

 

The next questions are about children.

 

4501        C1.    Do you have any children who are not living here with you at the present time?  Please include adopted children or

stepsons and stepdaughters not living here.            

 

 1.  YES

┌─────────┐

0 in 4502├─────────5.  NO, NO CHILDREN ELSEWHERE

└─────────┤

          └─────────9.  NA

        

 

 

4502        C1a.   How many do not live with you?          

 

Code NUMBER (01-20)

 

98.  DK

99.  NA

 

00.  Inap, 5 or 9 in 4501

 

 

 

4503        C2.    Altogether, how many living children do you have?  Again, please include any adopted children or stepsons and

stepdaughters you may have.                            

 

  Code NUMBER (01-20), except:

 

  98.  DK

  99.  NA

┌──────────────┐

0 in 4504-4525├─────00.  NONE

└──────────────┘

 

 

 

 

4504        C2a.   INTERVIEWER CHECKPOINT                                 

 

1.  R ONLY HAS ONE CHILD             

┌─────────┐

0 in 4505├─────────2.  ALL OTHERS

└─────────┘

0.  Inap, 00 in 4503

 

 

 

 


 

 

4505        C2b.   Is this a son or daughter?                             

 

1.  SON

2.  DAUGHTER

 

9.  NA

 

0.  Inap, 00 in 4503; 2 in 4504

 

 

 

4506        C3.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

0 in 4507-4510├─────1.  R HAS NO CHILDREN LIVING ELSEWHERE

└──────────────┘

  2.  R HAS ONLY ONE CHILD LIVING ELSEWHERE

  3.  R HAS MORE THAN ONE CHILD LIVING ELSEWHERE

 

  9.  NA

 

  0.  Inap, 00 in 4503

 

 

 

4507        C4/C5. Think about your (son/daughter/children) who (does/do) not live with you.  Does (he/she/how many of your children)

live within an hour's drive of here?                   

01.  YES (to C4); One (to C5)

 

02-20.

 

96.  NO (to C4); NONE (to C5)

 

98.  DK

99.  NA

 

00.  Inap, 00 in 4503; 1 in 4506

 

 

 

4508        C4a/C5a.  (RB, P. 8) In the past 12 months, how often did you have

contact with your (son/daughter/at least one of your children) who (doesn't/do not) live with you, either in person, by phone or by mail.  Would you say more than once a week, about once a week, 1 to 3 times a month, less than

once a month or never?                                 

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 

8.  DK

9.  NA

 


0.  Inap, 00 in 4503; 1 in 4506

 

[V4509-V4510:  BUILD = 0]

 

4511        C6.    INTERVIEWER CHECKPOINT                  

 

1.  R HAS ONLY ONE CHILD

2.  R HAS TWO OR MORE CHILDREN

 

0.  Inap, 00 in 4503

 

 

 

4512        C7/C16.  (RB, P. 9)  How much do your children make you feel loved

and cared for?  Would you say a great deal, quite a bit,

some, a little, or not at all?                         

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 

 

 

4513        C8/C17.  (RB, STILL ON P. 9) How much do you feel they make too

many demands on you?  (Would you say a great deal, quite a

bit, some, a little, or not at all?)                   

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 

 

 

 

4514        C9/C18.  (RB, STILL ON P. 9) How much do you feel you make too

many demands on your children?  (Would you say a great

deal, quite a bit, some, a little, or not at all?)     

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 


8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 

 

 

4515        C10/C19. (RB, STILL ON P. 9) How much are they willing to listen

when you need to talk about your worries or problems(--a

great deal, quite a bit, some, a little, or not at all)?      

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 

 

 

 

4516        C11/C20. (RB, STILL ON P. 9) How much are they critical of you or

what you do?  (Would you say a great deal, quite a bit,

some, a little, or not at all?)                        

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 

 

 

 

4517        C12/C21. (RB, P. 10) At this point in your life, how satisfied are

you with being a parent--are you completely, very,

somewhat, not very, or not at all satisfied?           

 

1.  COMPLETELY SATISFIED

2.  VERY SATISFIED

3.  SOMEWHAT SATISFIED

4.  NOT VERY SATISFIED

5.  NOT AT ALL SATISFIED

 

8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 


 

 

 

 

 

 

 

 

 

4518        C13/C22. Not using the booklet--How often do you feel bothered or

upset as a parent--almost always, often, sometimes,

rarely, or never?                                      

 

1.  ALMOST ALWAYS

2.  OFTEN

3.  SOMETIMES

4.  RARELY

5.  NEVER

 

8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 

 

 

 

4519        C14a/C23a. (RB, P. 11) How much do your children depend on you for

emotional support?  Would you say a lot, some, a little or

not at all?                                            

 

1.  A LOT            ┌───────────────┐

2.  SOME                                 USE SAME CODE 

3.  A LITTLE                             FOR V4520-4524

4.  NOT AT ALL            └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 

 

 

 

4520        C14b/C23b. How much do they depend on you for help or advice with

financial and legal matters?                           

 

 

4521        C14c/C23c. How much do they depend on you for help with errands,

babysitting or other chores?                           

 

 

4522        C14d/C23d. How much do you depend on your children for emotional

support?                                               

 

 


4523        C14e/C23e. How much do you depend on them for help or advice with

financial and legal matters?                           

 

 

4524        C14f/C23f. How much do you depend on them for help with errands or

other chores?                                          

 

 

 

 

 

 

 

 

4525        C15/C24. (RB, P. 12) At this point in your life, how often do you

and any of your children have unpleasant conflicts or disagreements?  Would you say more than once a week, about once a week, 1 to 3 times a month, less than once a month,

or never?                                              

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 

8.  DK

9.  NA

 

0.  Inap, 00 in 4503

 

 

                                                               Rev. 11/2/90

4526        C25.   How many grandchildren do you have, if any?

 

 01.  ONE

 

 02-60.

 

 98.  DK

 99.  NA

┌─────────┐

0 in 4527├─────────00.  NONE

└─────────┘

 

 

4527        C25a/C25b. (RB,[STILL ON]P. 12) How often do you see your

(grandchild/grandchildren)?  (Would you say more than once a week, about once a week, 1 to 3 times a month, less than

once a month, or never?)                               

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 


8.  DK

9.  NA

 

0.  Inap, 00 in 4526

 

 

 

Now I would like to ask you some questions about your relationships with your relatives and friends.  Please think of all your close family members, (including children,) as well as other friends and relatives.

 

 

 

 

 


 

 

SECTION D:  SOCIAL SUPPORT

 

 

4528        D1.    Is there anyone in your life with whom you can really

share your very private feelings and concerns?         

 

  1.  YES

┌──────────────┐

0 in 4529-4540├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

 

 

4529        D1a.   How many such people are there?                        

 

Code NUMBER (01-95)

 

98.  DK

99.  NA

 

00.  Inap, 5, 8-9 in 4528

 

 

 

[V4530-V4540:  BUILD = 0]

 

 

 

 

4541        D7.    (RB, P. 13)  The next questions are about friends and relatives other than children.  On the whole, how much do your friends and relatives make you feel loved and cared for?  Would you say a great deal, quite a bit, some, a

little, or not at all?                                 

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

 

 

 

 

 

 

 

 


 

 

4542        D8.    (RB, STILL ON P. 13) How much do you feel your friends and relatives make too many demands on you?  (Would you say a

great deal, quite a bit, some, a little, or not at all?)      

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

4543        D9.    (RB, STILL ON P. 13) How much are your friends and relatives willing to listen when you need to talk about your worries or problems(--a great deal, quite a bit,

some, a little, or not at all)?                        

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

4544        D10.   (RB, STILL ON P. 13) How much are they critical of you or what you do?  (Would you say a great deal, quite a bit,

some, a little, or not at all?)                        

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 


 

 

SECTION E:  RESPONSES TO THE LOSS

 

 

VAR #

 

For the next questions, please think about the past month.

 

4601        E1.    (RB, P. 14) During the past month, how often have you had thoughts or memories of your (husband/wife)?  Would you say several times a day,  daily or almost daily, 2 to 3 times a week, about once a week, less than once a week, or

never?                                                 

┌──────────────┐

0 in 4608-4609├─────1.  SEVERAL TIMES A DAY

└──────────────┼─────2.  DAILY OR ALMOST DAILY

               ├─────3.  2 TO 3 TIMES A WEEK

               ├─────4.  ABOUT ONCE A WEEK

               └─────5.  LESS THAN ONCE A WEEK

┌──────────────┐

0 in 4602-4607├─────6.  NEVER

└──────────────┘

  8.  DK

  9.  NA

 

 

 

4602        E2.    (RB, P. 15)  During the past month, did thoughts or memories of your (husband/wife) make you feel sad or upset?  Would you say no, never; yes, but rarely; yes,

sometimes; or yes, often?                              

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      USE SAME CODE 

3.  YES, SOMETIMES                       FOR V4603-4607

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 6 in 4601

 

 

 

4603        E3.    Did thoughts or memories of (him/her) make you feel happy

or at peace?                                           

 

 

4604        E4.    During the past month, have you had difficulty falling asleep because thoughts relating to (him/her) kept coming

into your mind?                                        

 

 

 

 

4605        E5.    Have you tried to block out memories or thoughts of your


(husband/wife)?                                        

 

 

 

4606        E6.    During the past month, did you find that you couldn't get thoughts of your (husband/wife) out of your mind even when

you wanted to?                                         

 

 

4607        E7.    During the past month, have you found yourself going over

and over what happened?                                

 

 

 

4608        E8.    (RB, P. 15)  During the past 6 months (that is, since [MONTH, YEAR]), did you ever find that you couldn't get thoughts of your (husband/wife) out of your mind even when you wanted to--(no, never; yes, but rarely; yes,

sometimes; or yes, often)?                             

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 1-5 in 4601

 

 

 

4609        E9.    (RB, STILL ON P. 15)  During the past 6 months, did you ever find yourself going over and over what happened--(no,

never; yes, but rarely; yes, sometimes; or yes, often)?

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 1-5 in 4601

 

 

 

4610        E10.   (RB, STILL ON P. 15)  During the past month, have you tried to keep busy so that you would be less likely to dwell on your (husband/wife) or (his/her) death?  (Would you say no, never; yes, but rarely; yes, sometimes; or

yes, often?)                                           

 

1.  NO, NEVER


2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

 

 

 

4611        E11.   (RB, STILL ON P. 15)  During the past month, have you avoided people or places that remind you of (him/her)?  (Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often?)                                        

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

 

 

4612        E12.   (RB, STILL ON P. 15)  During the past 6 months, did you ever ask yourself "Why me?" or "Why my (husband/wife)"?  (Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often?)                                        

┌─────────┐

0 in 4613├─────────1.  NO, NEVER

└─────────┤

                   2.  YES, BUT RARELY

                   3.  YES, SOMETIMES

                   4.  YES, OFTEN

         

          ├─────────8.  DK

          └─────────9.  NA

 

 

 

4613        E12a.  Were you able to answer this question?                 

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1, 8-9 in 4612

 

 

 

4614        E13.   (RB, STILL ON P. 15)  During the past month, have you ever found yourself searching to make sense or find some meaning in your (husband's/wife's) death--(no, never; yes,

but rarely; yes, sometimes; or yes, often)?            


  1.  NO, NEVER

┌──────────────┐

0 in 4615-4616├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               └─────4.  YES, OFTEN

             

  8.  DK

  9.  NA

 

 

 

 

 

4615        E13a.  (RB, STILL ON P. 15)  Has this happened during the past 6 months? (no, never; yes, but rarely; yes, sometimes; or

yes, often)?                                           

 

 1.  NO, NEVER

┌─────────┐

0 in 4616├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          └─────────4.  YES, OFTEN

             

 8.  DK

 9.  NA

 

 0.  Inap, 2-4 in 4614

 

 

 

4616        E13b.  (RB, STILL ON P. 15)  At any time since (his/her) death, have you ever found yourself searching to make sense or find some meaning in (his/her) death--(no, never; yes, but

rarely; yes, sometimes; or yes, often)?                

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 2-4 in 4614 or 4615

 

 

 

4617        E14.   (RB, P. 16) Have you made any sense or found any meaning in your (husband's/wife's) death?  Would you say no, not

at all; yes, a little; yes, some; or yes, a great deal?

┌──────────────┐

0 in 4620-4622├─────1.  NO, NOT AT ALL

└──────────────┘

┌──────────────┐

0 in 4618-4619├─────2.  YES, A LITTLE

└──────────────┼─────3.  YES, SOME

               └─────4.  YES, A GREAT DEAL

┌──────────────┐


0 in 4620-4622├─────8.  DK

└──────────────┴─────9.  NA

 

 

 

 

 

 

 

 

 

 

 

 

 

 

4618        E14a.  Can you tell me why you feel that way?                 

4619

11.   Spouse was young; too young to die

12.   Spouse in good health; was not (seriously) ill

13.   Combination of youth and good health (11+12)

 

14.   Spouse old; had lived a long time

15.   Spouse in poor health; couldn't survive illness; had been sick a long time

16.   Combination of old age and poor health (14+15)

17.   Had poor health habits (smoked, drank, didn't get medical care, etc.)

 

19.   R blames medical personnel: doctor at fault, incompetent

 

21.   References to God or religion; God's will; prayer as means of coping

22.   Other fatalistic responses; these things just happen (to everyone); death as part of life-cycle; "it was his time"; "that's life"

 

 

 

4618        E14a.  Continued                                              

4619

31.   Positive aspects of death; spouse no longer suffers; at peace now

32.   Positive mentions of spouse's life in general: "he had a good life"; "we had a good marriage"

 

 

 

81.   R angry/upset/confused--n.e.c.

 

 

 

96.   There is no answer/meaning; have found no meaning (yet)

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK


99.   NA

 

00.   Inap, 2-4 in 4617; no further mention

 

 

 

4620        E14b.  How have you done so?  (PROBE FOR A FULL RESPONSE.)

4621

Use same code as V4618-4619, except:

 

00.   Inap, 1, 8-9 in 4617; no further mention

 

 

 

 

 

 

 

4622        E14c.  (RB, STILL ON P. 16)  Are you comforted by this explanation--(no, not at all; yes, a little; yes, some; or

yes, a great deal)?                                    

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOME

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 1, 8-9 in 4617

 

 

 

E15.   (RB, P. 17)  Please tell me how true the following statements are as they apply to you now.

 

4623        E15.   At times, I want or need to think about my (husband/wife) or (his/her) death.  Is this very true, somewhat,

a little, or not true at all?                          

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        USE SAME CODE 

3.  A LITTLE TRUE                        FOR V4624-4626

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

 

4624        E16.   Almost everything I see or hear brings back painful

reminders of my (husband/wife).                        

 

 

4625        E17.   I try not to think about what happened.                

 

 


4626        E18.   I do not see any purpose in dwelling on my (husband's/

wife's) death.                                         

 

 

 

4627        E19.   (RB, STILL ON P. 17)  It is upsetting to come into contact with reminders of my (husband/wife)--(very true, somewhat,

a little, or not true at all)?                         

┌─────────┐

0 in 4628├─────────1.  VERY TRUE

└─────────┼─────────2.  SOMEWHAT TRUE

          └─────────3.  A LITTLE TRUE

 

                    4.  NOT TRUE AT ALL

 

 8.  DK

 9.  NA

 

 

 

 

 

4628        E19a.  (RB, STILL ON P. 17)  There were times in the past 6 months when it was upsetting to come into contact with reminders of (him/her)--(very true, somewhat, a little, or

not true at all)?                                      

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1-3 in 4627

 

 

 

4629        E20.   (RB, STILL ON P. 17) I feel the need to be with people who will let me talk about my (husband/wife) or (his/her) death.  (Is this very true of you, somewhat,

a little, or not true at all of you?)                  

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

 

 


4630        E21.   (RB, P. 18) During the past month, how often did you actually talk about your (husband/wife) or (his/her) death with anyone?  Would you say  several times a day, daily or almost daily, 2 to 3 times a week, about once a week, less

than once a week, or never?                            

 

  1.  SEVERAL TIMES A DAY

  2.  DAILY OR ALMOST DAILY

  3.  2 TO 3 TIMES A WEEK

  4.  ABOUT ONCE A WEEK

  5.  LESS THAN ONCE A WEEK

┌──────────────┐

0 in 4631-4634├─────6.  NEVER

└──────────────┘

  8.  DK

  9.  NA

 

 

 

 

 

 

 

 

 

 

 

 

 

4631        E22.   (RB, P. 19) In general, during the past month, has talking with others about (him/her) made you feel sad or upset?  Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often?                                         

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6 in 4630

 

 

 

4632        E23.   (RB, STILL ON P. 19) Has talking about (him/her) made you feel happy or at peace during the past month--(no, never;

yes, but rarely; yes, sometimes; or yes, often)?       

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6 in 4630

 

 


4633        E24.   (RB, STILL ON P. 19) During the past month, has talking about (him/her), or (his/her) death, or how you are doing seemed to make other people uncomfortable--(no, never;

yes, but rarely; yes, sometimes; or yes, often)?       

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6 in 4630

 

 

 

 

 

 

 

 

 

 

 

 

 

 

4634        E25.   (RB, STILL ON P. 19)  During the past month, have you ended up talking about your (husband/wife) or (his/her) death, or how you are doing even when you didn't want to--(no, never; yes, but rarely; yes, sometimes; or yes,

often)?                                                

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6 in 4630

 

 

 

4635        E26.   (RB, P. 20)   Please tell me how true the following statements are as they apply to you.

At times I find that I want or need to cry.  Is this very true of you, somewhat, a little, or not true at all of

you?                                                   

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK


9.  NA

 

 

 

4636        E27.   (RB, STILL ON P. 20) I believe that there is no point in crying over the loss of my (husband/wife) since crying will not bring (him/her) back.  (Is this very true for

you, somewhat, a little, or not true at all for you?)  

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

4637        E28.   (RB, P. 21) During the past month, how often did you actually cry about the loss of your (husband/wife)?  Would you say several times a day, daily or almost daily, 2 to 3 times a week, about once a week, less than once a week, or

never?                                                 

┌─────────┐

0 in 4640├─────────1.  SEVERAL TIMES A DAY

└─────────┼─────────2.  DAILY OR ALMOST DAILY

          ├─────────3.  2 TO 3 TIMES A WEEK

          ├─────────4.  ABOUT ONCE A WEEK

          └─────────5.  LESS THAN ONCE A WEEK

┌───────────────┐

0 in 4638-4639,├────6.  NEVER

     4641-4643

└───────────────┼────8.  DK

                └────9.  NA

 

 

 

4638        E28a.  How long did these periods of crying typically last?--

MINUTES                                                

 

Code MINUTES (01-95), except:

 

98.  DK

99.  NA

 


00.  MINUTES not given; Inap, 6, 8-9 in 4637

 

 

 

4639        E28a.  How long did these periods of crying typically last?--

HOURS                                                  

 

Code HOURS (01-95), except:

 

98.  DK

99.  NA

 

00.  HOURS not given; Inap, 6, 8-9 in 4637

 

 

 

4640        E28b.  (RB, P. 22) At any time since your (husband's/wife's) death did you ever cry about (his/her) loss?  Would you say no, never; yes, but rarely; yes, sometimes; or yes,

often?                                                 

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 1-5 in 4637

 

 

 

 

4641        E29.   (RB, P. 22) In general, during the past month, has crying made you feel worse than you did before--no, never; yes,

but rarely; yes, sometimes; or yes, often?             

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6, 8-9 in 4637

 

 

 

4642        E30.   (RB, STILL ON P. 22) Has crying made you feel better during the past month(--no, never; yes, but rarely; yes,

sometimes; or yes, often)?                             

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES


4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6, 8-9 in 4637

 

 

 

4643        E31.   (RB, STILL ON P. 22) During the past month, did you become tearful even when you didn't want to? (Would you say no,

never; yes, but rarely; yes, sometimes; or yes, often)?

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 6, 8-9 in 4637

 

 


 

 

SECTION F:  COPING WITH PROBLEMS OF WIDOWHOOD

 

 

VAR #

 

The next questions are about problems and changes facing bereaved people.

 

4701        F1.    (RB, STILL ON P. 22)  During the past month, have you experienced feelings of grief, loneliness or missing your (husband/wife)?   (Would you say no, never; yes, but

rarely; yes, sometimes; or yes, often?)                

 

  1.  NO, NEVER

┌──────────────┐

0 in 4702-4703├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               └─────4.  YES, OFTEN

             

  8.  DK

  9.  NA

 

 

 

4702        F1a.   (RB, STILL ON P. 22)  Have you had these feelings in the last 6 months? (no, never; yes, but rarely; yes,

sometimes; or yes, often)?                             

 

 1.  NO, NEVER

┌─────────┐

0 in 4703├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          └─────────4.  YES, OFTEN

             

 8.  DK

 9.  NA

 

 0.  Inap, 2-4 in 4701

 

 

 

4703        F1b.   (RB, STILL ON P. 22) Have you ever had feelings of grief, loneliness or missing your (husband/wife) since (he/she) died--(no, never; yes, but rarely; yes, sometimes; or yes,

often?)                                                

┌──────────────┐

0 in 4704-4716├─────1.  NO, NEVER

└──────────────┤

                    2.  YES, BUT RARELY

                    3.  YES, SOMETIMES

                    4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 2-4 in 4701 or 4702


 

 

F2.         (RB, P. 23) I am going to read you a list of things people sometimes do to handle feelings of grief, loneliness or missing their (husband/wife).  For each one, please tell me how much you have done this to help you cope with your feelings, at any time since your (husband/wife) died.

 

4704        F2a.   To cope with these feelings, how much have you gotten out of the house--gone somewhere, or taken a walk or drive?

Have you done this a lot, a little, or not at all?     

 

1.  A LOT            ┌───────────────┐

2.  A LITTLE                             USE SAME CODE 

3.  NOT AT ALL                           FOR V4705-4712

                  └───────────────┘

7.  IF VOLUNTEERED: DID, BUT NOT TO COPE

    WITH SPOUSE'S DEATH

 

8.  DK

9.  NA

 

0.  Inap, 1, 8-9 in 4703

 

 

 

4705        F2b.   How much have you kept busy or tried to get involved in

some activity?                                         

 

 

4706        F2c.   How much have you turned to God for strength and comfort?   

 

 

4707        F2d.   How much have you tried to dull the pain you are feeling

by turning to alcohol, food or drugs, or sleeping more?

 

 

4708        F2e.   How much have you tried to think about the good things

about your life?                                       

 

 

4709        F2f.   How much have you told yourself that things will get better with time; that you have gone through the worst of

it?                                                    

 

 

4710        F2g.   How much have you tried to remember the good times that

you and your (husband/wife) had together?              

 

 

4711        F2h.   How much have you done things that help you feel close to

your (husband/wife), such as going to the cemetery?    

 


4712        F2j.   How much have you tried to forget about what has happened?  

 

 

 

 

 

 

 

 

F3.    For the next few questions you can just answer yes or no.  To help handle feelings of grief, loneliness or missing your (husband/wife), have you...

 

4713        F3a.   ...gone to a self-help group or support group for people

who have lost a spouse?                                

 

1.  YES            ┌───────────────┐

5.  NO                                   USE SAME CODE 

                                         FOR V4714-4716

8.  DK            └───────────────┘

9.  NA

 

0.  Inap, 1, 8-9 in 4703

 

 

 

4714        F3b.   Have you seen a minister, priest or other clergy for help?      

 

 

4715        F3c.   Have you talked to your family doctor about your feelings

of grief, loneliness or missing your (husband/wife)?   

 

 

4716        F3d.   Have you gone to a mental health professional for help--                  someone like a social worker or psychologist?          

 

 

 

4717        F4.    (RB, P. 24)  During the past month, have you been bothered by having to plan or fix meals and eat on your own?  Would you say no, never; yes, but rarely; yes, sometimes; or

yes, often?                                            

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

 

 

[V4718:  BUILD = 0]

 


 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

4719        F5.    (RB, STILL ON P. 24)  During the past month, have you experienced problems keeping up with things around the house such as cleaning, paying bills, maintenance of your home and car or doing laundry?  (Would you say no, never;

yes, but rarely; yes, sometimes; or yes, often?)       

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

 

[V4720:  BUILD = 0]

 

 

 

4721        F6.    (RB, STILL ON P. 24)  During the past month, have you been bothered by having to handle such things as your (husband's/wife's) estate, arranging for credit or dealing with insurance companies or agencies like Blue Cross or Social Security?  (Would you say no, never; yes, but

rarely; yes, sometimes; or yes, often?)                

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

 

 

[V4722:  BUILD = 0]

 

 

 

 


4723        F7.    (RB, STILL ON P. 24)  During the past month, have you been troubled by having to make major decisions without your (husband/wife), such as decisions about major purchases or whether or not to move?  (Would you say no, never; yes,

but rarely; yes, sometimes; or yes, often?)            

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

 

 

[V4724-V4725:  BUILD = 0]

 

 

4726        F8.    During the past month, have you had any problems as a

result of being widowed that I haven't asked you about?

 

  1.  YES

┌──────────────┐

0 in 4727-4728├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

 

 

4727        F8a.   What other problems have you experienced?

4728

11.   Emotional problems: loneliness, depression

12.   Social problems; problems with friends/other couples; "feel like a 5th wheel"

13.   Financial problems: (increased) bills or expenses; debt; financial decisions more difficult

 

 

 

21.   Upkeep/maintenance of house or car (exc. 13); no one to fix things; difficulty getting work done

 

 

 

31.   Transportation; can't/don't drive; "spouse always drove"

 

 

 

41.   Safety; no one around to watch house; fearful at night

 

 

 

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 


00.   Inap, 5, 8-9 in 4726; no further mention

 

 


 

 

SECTION G:  MARRIAGE

                                      

VAR #

 

4801        G0.    INTERVIEWER CHECKPOINT                  

 

  1.  R WAS INTERVIEWED AT WAVE 1

┌──────────────┐

0 in 4802-4803├─────2.  ALL OTHERS

└──────────────┘

 

 

 

4802        G0a.   Did your (husband/wife) have any serious, ongoing, health

problems before (he/she) died?                         

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 2 in 4801

 

 

 

[V4803:  BUILD = 0]

 

 

 

4804        G2.    INTERVIEWER CHECKPOINT                                 

 

1.  SPOUSE HAD (SERIOUS) ONGOING HEALTH PROBLEM

2.  SPOUSE DID NOT HAVE (SERIOUS) ONGOING HEALTH PROBLEM

 

 

G2a.   For the next questions, please think about the last few years of your marriage before your (husband/wife) became very ill.

G2b.   For the next questions, please think about the last few years of your marriage.

 

 

 

4805        G3.    (RB, P. 25)  How much did your (husband/wife) make you feel loved and  cared for?  Would you say a great deal,

quite a bit, some, a little, or  not at all?           

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA


 

 

4806        G4.    (RB, STILL ON P. 25) How much do you feel (he/she) made too many demands on you in the last few years of your marriage (before (he/she) became very ill)?  (Would you say a great deal, quite a bit, some, a little, or not at

all?)                                                  

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

4807        G5.    (RB, STILL ON P. 25)  In the last few years of your marriage (before (he/she) became very ill)  how much was (he/she) willing to listen when you needed to talk about your worries or problems--(a great deal, quite a bit,

some, a little, or not at all)?                        

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

4808        G6.    (RB, STILL ON P. 25) During the last few years of your marriage (before [he/she] became ill) how much were you willing to listen when your (husband/wife) needed to talk about (his/her) worries or problems--(a great deal, quite

a bit, some, a little, or not at all)?                 

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

 

 

 

 

 


 

 

 

 

4809        G7.    (RB, STILL ON P. 25)  How much do you think you made your (husband/wife) feel loved and cared for--(a great deal,

quite a bit, some, a little, or not at all)?           

 

1.  A GREAT DEAL

2.  QUITE A BIT

3.  SOME

4.  A LITTLE

5.  NOT AT ALL

 

8.  DK

9.  NA

 

 

 

4810        G8.    (RB, P. 26) During the last few years of your marriage (before [he/she] became ill), how often would you say you and your (husband/wife) typically had unpleasant disagreements or conflicts?  Would you say more than once a week, about once a week, 1 to 3 times a month, less than

once a month, or never?                                

 

1.  MORE THAN ONCE A WEEK

2.  ABOUT ONCE A WEEK

3.  1 TO 3 TIMES A MONTH

4.  LESS THAN ONCE A MONTH

5.  NEVER

 

8.  DK

9.  NA

 

 

 

4811        G9.    (RB, P. 27)  Please tell me how true the next two statements are.  My (husband/wife) did not treat me as well as I deserved to be treated.  Is this very true,

somewhat true, a little true, or not true at all?      

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

 

4812        G10.   (RB, STILL ON P. 27)  I did not treat my (husband/wife) as well as (he/she) deserved to be treated.  (Is this very

true, somewhat true, a little true, or not true at all?)      

 

1.  VERY TRUE

2.  SOMEWHAT TRUE


3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

[V4813-V4839:  BUILD = 0]


 

 

SECTION H:  SELF DESCRIPTION

 

                                      

VAR #

 

H1.    (RB, STILL ON P. 27) Please tell me how true the following statements are as they apply to you now.

 

4901        H1.    On the whole I am satisfied with myself. (Is this very true, somewhat, a little, or not true at all as it applies

to you?)                                               

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        USE SAME CODE 

3.  A LITTLE TRUE                        FOR V4902-4908

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

 

 

4902        H2.    At times I think I am no good at all.                  

 

 

4903        H3.    I wish I could have more respect for myself.           

 

 

4904        H4.    All in all, I am inclined to feel that I am a failure. 

 

 

4905        H5.    I feel I am a person of worth, at least equal with others.    

 

 

4906        H6.    I have never worried about having a painful disease.   

 

 

4907        H7.    Funerals sometimes upset me.                           

 

 

4908        H8.    I am afraid of dying of cancer.                        


H10.   (SAB, P. 1)  Please look at page 1 of the large blue booklet where you will find a number of statements.  After each statement, put an "X" in the answer category that indicates how strongly you agree or disagree with the statement as it applies to you.  The best answer is usually the one that comes to your mind first, so try not to spend too much time on any one statement.  Continue until you see a STOP sign at the bottom of page 4.  (If you prefer, I can read the statements to you.)

         ┌───────────────────────────────────────────────────────────────┐

         NOTE:  ITEMS H11 - H54 are reproduced by special permission of

         the publisher, Psychological Assessment Resources, Inc.,      

         16102 North Florida Avenue, Lutz, Florida, 33549, from the NEO

         Personality Inventory, by Paul Costa, and Robert McCrae,      

         Copyright 1978, 1985.  Further reproduction is prohibited     

         without permission of PAR, Inc.                               

         └───────────────────────────────────────────────────────────────┘

 

 

4909        H11.   I have a very active imagination.   Do you strongly agree,

agree, feel neutral, disagree or strongly disagree?    

 

1.  STRONGLY AGREE            ┌───────────────┐

2.  AGREE                                USE SAME CODE 

3.  NEUTRAL                              FOR V4910-4952

4.  DISAGREE            └───────────────┘

5.  STRONGLY DISAGREE

 

8.  DK

9.  NA

 

 

 

4910        H12.   I keep my belongings neat and clean.                   

 

 

4911        H13.   I'm an even-tempered person.                           

 

 

4912        H14.   I am dominant, forceful, and assertive.                

 

 

4913        H15.   I'm pretty good about pacing myself so as to get things

done on time.                                          

 

 

4914        H16.   I don't get much pleasure from chatting with people.   

 

 

4915        H17.   I like to have a lot of people around me.              

 

 

4916        H18.   I am sometimes completely absorbed in music I am listening


to.                                                    

 

 

4917        H19.   I have a clear set of goals and work toward them in an

orderly fashion.                                       

 

 

4918        H20.   I rarely experience strong emotions.                   

 

 

4919        H21.   I work hard to accomplish my goals.                    

 

 

4920        H22.   I am easily frightened.                                

 

 

4921        H23.   I tend to blame myself when anything goes wrong.       

 

 

4922        H24.   I waste a lot of time before settling down to work.    

 

 

4923        H25.   I often worry about things that might go wrong.        

 

 

4924        H26.   Sometimes I'm not as dependable or reliable as I should

be.                                                    

 

 

4925        H27.   Poetry has little or no effect on me.                  

 

 

4926        H28.   It takes a lot to get me mad.                          

 

 

4927        H29.   I experience a wide range of emotions or feelings.     

 

 

4928        H30.   I have strong emotional attachments to my friends.

 

 

4929        H31.   I never seem to be able to get organized.              

 

 

4930        H32.   I prefer jobs that let me work alone without being

bothered by other people.                              

 

 


4931        H33.   I strive for excellence in everything I do.            

 

 

4932        H34.   I am seldom sad or depressed.                          

 

 

4933        H35.   I'm pretty set in my ways.                             

 

 

4934        H36.   I have trouble resisting my cravings.                  

 

 

4935        H37.   I have sometimes done things just for "kicks" or

"thrills".                                             

 

 

4936        H38.   I enjoy solving problems or puzzles.                   

 

 

4937        H39.   It would not bother me if I had to punish a child or pet.       

 

 

4938        H40.   Once I find the right way to do something, I stick to it.        

 

4939        H41.   At times I have been so ashamed I just wanted to hide. 

 

 

4940        H42.   Some people think I'm selfish and egotistical.         

 

 

4941        H43.   I tend to be cynical and skeptical of others' intentions.

 

 

4942        H44.   I often feel inferior to others.                       

 

 

4943        H45.   I would rather cooperate with others than compete with

them.                                                  

 

 

4944        H46.   I believe that most people will take advantage of you if

you let them.                                          

 

4945        H47.   Some people think of me as cold and calculating.       

 

 


4946        H48.   I am a cheerful, high-spirited person.                 

 

 

4947        H49.   I consider myself broad-minded and tolerant of other

people's lifestyles.                                   

 

 

4948        H50.   I'm hard-headed and tough-minded in my attitudes.      

 

 

4949        H51.   I generally try to be thoughtful and considerate.      

 

 

4950        H52.   When everything seems to be going wrong, I can still make

good decisions.                                        

 

 

4951        H53.   I am a very active person.                             

 

 

4952        H54.   I have a wide range of intellectual interests.         

 

 


 

 

SECTION J:  HEALTH AND LIMITATION OF ACTIVITIES

                                      

VAR #

 

 

5001        J1.    The next questions are about your health.  In general, how satisfied are you with  your health‑‑completely, very,

somewhat, not very, or not at all satisfied?           

 

1.  COMPLETELY SATISFIED

2.  VERY SATISFIED

3.  SOMEWHAT SATISFIED

4.  NOT VERY SATISFIED

5.  NOT AT ALL SATISFIED

 

8.  DK

9.  NA

 

 

 

J2.    We'd like to know if you have experienced any of the following health problems during the last 6 months.

 

5002        J2a.   Have you had arthritis or rheumatism?   

 

1.  YES            ┌──────────────┐

5.  NO                                   USE SAME CODE

                                         FOR V5003-5009

8.  DK            └──────────────┘

9.  NA

 

 

5003        J2b.   During the last 6 months, have you had a lung disease? 

 

 

5004        J2c.   Have you had hypertension, sometimes called high blood

pressure, or have you taken medication for it?         

 

 

5005        J2d.   Have you had a heart attack or other heart trouble during

the last 6 months?                                     

 

 

5006        J2e.   Have you had diabetes or high blood sugar, or have you

taken medication for it?                               

 

 

5007        J2f.   Have you had a stroke during the last 6 months?        

 

 

5008        J2g.   Have you had any broken or fractured bones?            

 


5009        J2h.   Have you lost any amount of urine beyond your control

during the last 6 months?                              

 

 

 

 

5010        J3.    Have you had cancer or a malignant tumor of any kind, or

have you been treated for it in the past 6 months?     

 

1.  YES

┌──────────────┐

0 in 5011-5013├───5.  NO

└──────────────┤

               ├───8.  DK

               └───9.  NA

 

 

 

5011        J3a.   What kind of cancer or malignant tumor did you have? (In

5012               what part of your body did it start?)                  

5013

01.  "Abdomen"--NFS          33.  Melanoma

02.  Adrenal gland           95.  Metastasized; "all over"

03.  "Arm"--NFS              34.  Mouth; oral

04.  "Back"--NFS             08.  Myeloma (multiple)

05.  Bladder                 35.  "Neck"--NFS

06.  "Blood"--NFS            36.  Nose; nasal

07.  Bone; cartilage         37.  Ovary

08.  Bone marrow             38.  Pancreas; ampulla of

09.  Brain; astrocytoma           Vater

10.  Breast                  39.  "Pelvis"--NFS

11.  Bronchia; bronchus      40.  Penis

12.  Bowel                   41.  Prostate

12.  Rectum

13.  Cervix                  33.  Skin--melanoma; black

12.  Colon                        mole

14.  Ear                     42.  Skin--basal cell

15.  Endometrium             43.  Skin (other or NA which)

16.  Esophagus                    incl. any body part with

17.  "Extremities"--NFS           skin cancer

18.  Eye                     44.  Spine

19.  "Face"--NFS             45.  Spleen

20.  "Female organs"--NFS    46.  Stomach

21.  Gallbladder

22.  Gastrointestinal        47.  Testicles

48.  Throat

23.  "Head"--NFS             49.  Thyroid; goiter on neck

24.  Hip                     50.  Tongue

25.  Hodgkins                51.  Trachea

26.  Jaw                     52.  Urethra/ureter

27.  Kidney; renal           15.  Uterus/womb

28.  Larynx; vocal cords     53.  Vagina

29.  "Leg"--NFS              54.  Vulva; labia

06.  Leukemia    ┌─────────┐

30.  Lip         Make Card├─97.  Other

31.  Liver       └─────────┘

11.  Lung; "chest"--NFS      98.  DK

32.  Lymph nodes/glands;     99.  NA


     "glands behind the

     ear"; "nodes";          00.  Inap, 5, 8-9 in 5010;

     lymphoma (exc. 25)           no further mentions


5014        J4.    In the past 6 months, have you had any major health

problems that I haven't asked you about?

 

1.  YES

┌──────────────┐

0 in 5015-5017├───5.  NO

└──────────────┤

               ├───8.  DK

               └───9.  NA

 

 

 

5015        J4a.  What are they?                                          

5016

5017               Use HEALTH CONDITION MASTER CODE

 

000.  Inap, 5, 8-9 in 5014; no further mention

 

 

 

5018        J5.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

0 in 5201-5255├───1.  R ANSWERS "NO" TO ALL QUESTIONS IN J2a-h,J3 AND J4

└──────────────┘

2.  ALL OTHERS

 

 


 

 

SECTION J:  HEALTH AND LIMITATION OF ACTIVITIES

 

 

VAR #

 

MARK THE BOX NEXT TO ALL PREPRINTED CONDITIONS IN THE GRID TO WHICH R ANSWERED "YES" IN J2a-h,J3 AND J4. IF MORE THAN 5, ASK J6-9a ONLY FOR FIRST 5 CONDITIONS.

 

5201        J5.    SUMMARY                                                

 

Code # of columns filled in for J2a-h, J3a and J4a, including supplement pages, if any (01-14).

┌──────────────┐

0 in 5211-5255├───01.  One

└──────────────┘

┌──────────────┐

0 in 5220-5255├───02.  Two

└──────────────┘

┌──────────────┐

0 in 5229-5255├───03.  Three

└──────────────┘

┌──────────────┐

0 in 5238-5255├───04.  Four

└──────────────┘

┌──────────────┐

0 in 5247-5255├───05.  Five

└──────────────┘

06.  Six

  .

  .

  .

14.  Fourteen

 

99.  NA (see Supervisor before using)

 

00.  Inap, 1 in 5018


┌────────────────────────────────────────────────────────────┐

NOTE:  The name of a "SPECIFY" condition must be matched to

its order of mention at J4a (p.43).  E.g., if "gout" was the

3rd condition coded at J4a, and it appears as a "SPECIFY" on

a supplement page, the code for condition type is 13.      

└────────────────────────────────────────────────────────────┘

 

5202(#1)           CONDITION TYPE (from top of column)                    

5211(#2)

5220(#3)           01.   (J2a) ARTHRITIS/RHEUMATISM

5229(#4)           02.   (J2b) LUNG DISEASE

5238(#5)           03.   (J2c) HYPERTENSION/HIGH BLOOD PRESSURE

5247(#6)           04.   (J2d) HEART TROUBLE

05.   (J2e) DIABETES/HIGH BLOOD SUGAR

06.   (J2f) STROKE

07.   (J2g) BROKEN OR FRACTURED BONES

08.   (J2h) LOSS OF URINE BEYOND CONTROL

09.   (J3a) CANCER

 

11.   (J4a) SPECIFY--1st mention at J4a, p.43

12.   (J4b) SPECIFY--2nd mention at J4a, p.43

13.   (J4c) SPECIFY--3rd mention at J4a, p.43

 

 

00.   Inap, 1 in 5018; no further conditions

 

 

 

5203(#1)    J6.    Were you hospitalized during the last 6 months for

5212(#2)           (CONDITION)?                                           

5221(#3)

5230(#4)           1.  YES

5239(#5)           5.  NO

5248(#6)

8.  DK

9.  NA

 

0.  Inap, 1 in 5018; no further conditions

 

 

 

5204(#1)    J7.    Did (CONDITION) start in the last 6 months or was it going

5213(#2)           on before that?                                        

5222(#3)  ┌─────────┐

5231(#4)  0 in     ├───1.  STARTED IN LAST 6 MONTHS

5240(#5)  J8-J9a  

5249(#6)  for this

          condition

          └─────────┘

          ┌─────────┐

          0 in next├───2.  GOING ON BEFORE

          2 vars  

          └─────────┼───8.  DK

                    └───9.  NA

 

     0.  Inap, 1 in 5018; no further conditions

 

 


 

 

5205(#1)    J7a.   In what month did it start? (RECORD YEAR, ALSO.)--MONTH

5214(#2)

5223(#3)           Code MONTH (01-12)

5232(#4)

5241(#5)           98.  DK

5250(#6)           99.  NA

 

00.  Inap, 1 in 5018; 2, 8-9 in J7 for this condition;

     no further conditions

 

 

 

5206(#1)    J7a.   In what month did it start? (RECORD YEAR, ALSO.)--YEAR 

5215(#2)

5224(#3)           Code YEAR (1987-1995)

5233(#4)

5242(#5)           9998.  DK

5251(#6)           9999.  NA

 

0000.  Inap, 1 in 5018; 2, 8-9 in J7 for this condition;

       no further conditions

 

 

 

5207(#1)    J8.    In the past 6 months, has your (CONDITION) become better,

5216(#2)           stayed about the same, or become worse?                

5225(#3)

5234(#4)           1.  BETTER

5243(#5)           2.  SAME

5252(#6)           3.  WORSE

 

8.  DK

9.  NA

 

0.  Inap, 1 in 5018; 1 in J7 for this condition;

    no further conditions