The Changing Lives of Older Couples Study

Wave II Widow Follow-up Survey

CODEBOOK

 

                                   Facesheet

                                      

 

VAR #

 

  4001      FS.    Seq.#/CASE ID                                          

 

 

 

  4002      FS.    Respondent # -- 1st 4 digits (CLOC ID#)                

 

 

 

  4003      FS.    Respondent # -- last 2 digits, preprinted              

 

 

 

[V4004:  BUILD 6-digit Respondent ID# (V4002+V4003)]

 

 

                                                              Rev. 10/24/91

  4005      FS.    Result Code                                            

 

01.  Complete I'v

03.  Complete Telephone I'v

05.  Partial I'v

07.  Partial Telephone I'v

 

 

 

 4006       FS.    Respondent "history":  2 digits                        

 

Code 1st 2-digit # precoded on Facesheet

 

 

 

  4007      FS.    ID# of person to whom R is matched                     

 

Code 1st 4 digits of ID# precoded on Facesheet

 

 

 

  4008      FS.    ID# of person to whom R is matched                     

 

Code last 2 digits of ID# precoded on Facesheet

 

 

 

[V4009:  BUILD 6-digit ID# (V4007+V4008)]

 


 4010       FS.    "History" of person to whom R is matched:  2 digits    

 

Code last 2-digit # precoded on Facesheet

 

 

 

 4011       FS1.   INTERVIEWER's ID# (4 digits from label)                

 

 

 

 4012       FS2.   Interview No.: (2 digits from box)                     

 

99.  NA

 

 

 

 4013       FS3.   Date of Interview--MONTH                               

 

Code MONTH (01-12)

 

 

 

 4014       FS3.   Date of Interview--DAY                                 

 

Code DAY (01-31)

 

 

 

 4015       FS3.   Date of Interview--YEAR                                

 

Code 4-digit YEAR (1988-1995)

 

 

 

 4016       FS4.   Length of Interview                                    

 

Code # of MINS (001-240)

 

 


 

 

SECTION A:  HOUSEHOLD LISTING AND CIRCUMSTANCES OF THE DEATH

 

 

A1.    First, I need to list all the people who live here.  I don't need names, just the age, sex and relationship to you for each person.  Let's start with you.  How old are you?

 

Now I need the age, sex and relationship to you of any other adults and children who live here.

 

4101        A1.    SUMMARY # Persons in HOUSEHOLD                         

┌──────────────┐

0 in 4105-4131├─────    01.  One            ┌──────────────┐

└──────────────┘                                            Code # persons

┌──────────────┐                                            listed in grid

0 in 4108-4131├─────02.  Two                               (01-20).     

└──────────────┘                                                      └──────────────┘

┌──────────────┐

0 in 4111-4131├─────03.  Three

└──────────────┘

┌──────────────┐

0 in 4114-4131├─────04.  Four

└──────────────┘

┌──────────────┐

0 in 4117-4131├─────05.  Five

└──────────────┘

┌──────────────┐

0 in 4120-4131├─────06.  Six

└──────────────┘

┌──────────────┐

0 in 4123-4131├─────07.  Seven

└──────────────┘

┌──────────────┐

0 in 4126-4131├─────08.  Eight

└──────────────┘

┌──────────────┐

0 in 4129-4131├─────09.  Nine

└──────────────┘

  10.  Ten

    .

    .

    .

  20.  Twenty

 

  99.  NA


4102(#1)    A1(a). MEMBERS OF THE HOUSEHOLD BY RELATIONSHIP TO RESPONDENT 

4105(#2)

4108(#3)           Partner/Spouse

4111(#4)          

4114(#5)           01.   RESPONDENT

4117(#6)           02.   Spouse of R

4120(#7)           03.   Partner of R

4123(#8)

4126(#9)           Child

4129(#10)

10.   Child(ren), NA sex (incl. foster child/stepchild)

11.   Son (incl. adopted)

12.   Daughter (incl. adopted)

13.   Stepson (incl. partner's son)

14.   Stepdaughter (incl. partner's daughter)

15.   Son-in-law (incl. daughter's partner)

16.   Daughter-in-law (incl. son's partner)

17.   Foster son

18.   Foster daughter

 

Parent/Grandparent

 

20.   Parent, NA sex ("parents" code 21, 22)

21.   Father (incl. adoptive father)

22.   Mother (incl. adoptive mother)

23.   Stepfather

24.   Stepmother

25.   Father-in-law (incl. partner's father); ("my in-laws" code 25 and 26)

26.   Mother-in-law (incl. partner's mother)

27.   Grandparent; great-grandparent, NA sex

28.   Grandfather; great-grandfather

29.   Grandmother; great-grandmother

 

Sibling/Sibling-in-law

 

31.   Brother

32.   Sister

33.   Stepbrother

34.   Stepsister

35.   Brother-in-law

36.   Sister-in-law


4102(#1)    A1(a). Continued                                              

4105(#2)

4108(#3)           Other Relatives

4111(#4)          

4114(#5)           40.   Grandchild/great grandchild, NA sex

4117(#6)           41.   Grandson; great grandson

4120(#7)           42.   Granddaughter; great granddaughter

4123(#8)           43.   Nephew

4126(#9)           44.   Niece

4129(#10)          45.   Uncle; great-uncle

46.   Aunt; great-aunt

47.   Cousin

48.   Other "in-laws"

┌─────────┐

Make Card├────────49.   Other relative

└─────────┘

 

 

Unrelated Persons

 

62.   Housemate/roommate

63.   Household employee; live-in sitter; housekeeper

64.   Friend

66.   Person related to R's partner (exc. child or parent)

67.   Roomer; boarder

 

 

 

 

 

 

┌─────────┐

Make Card├────────97.   Other unrelated person

└─────────┘

98.   DK

99.   NA

 

00.   Inap, no further persons in HU

 

 

4103(#1)    A1(b). SEX                                                    

4106(#2)

4109(#3)           1.  Male

4112(#4)           2.  Female

4115(#5)

4118(#6)           9.  NA

4121(#7)

4124(#8)           0.  Inap, no further persons listed

4127(#9)

4130(#10)

 

 

 

 

 

 

 

 

 


 

4104(#1)    A1(c). AGE                                                    

4107(#2)

4110(#3)           Code AGE (01-97)

4113(#4)

4116(#5)           01.  One year or less

4119(#6)

4122(#7)           97.  97 years or more

4125(#8)

4128(#9)           98.  DK

4131(#10)          99.  NA

 

00.  Inap, no further persons listed

 

 

 

4132        A1a.   INTERVIEWER CHECKPOINT                                 

┌────────────────┐

0 in 4133,      │────1.  R WAS INTERVIEWED AT WAVE I

4201-4241, 4301-

4344, 4401-4406    2.  ALL OTHERS

└────────────────┘

 

 

4133        A2.    I'd like to begin by asking you about the circumstances of your (husband's/wife's) death.  How old was your (husband/

wife) when (he/she) died?                              

 

Code YEARS (40-97)

 

97.  97 years or more

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132

 


 

 

SECTION A:  HOUSEHOLD LISTING AND CIRCUMSTANCES OF THE DEATH

 

                                      

VAR #

 

4201        A3.    What was the cause of (his/her) death?  (IF ACCIDENT,

4202               PROBE:  What kind of accident? AND OBTAIN BRIEF

4203               DESCRIPTION OF CIRCUMSTANCES)                          

 

Use HEALTH CONDITION MASTER CODE

 

000.  Inap, 1 in 4132; no further mention

 

 

 

4204        A4.    INTERVIEWER CHECKPOINT                  

┌──────────────┐

0 in 4205-4241├─────1.  CAUSE OF DEATH WAS ACCIDENT, MURDER OR SUICIDE

└──────────────┘

┌──────────────┐

0 in 4301-4344├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 4132

 

 

 

4205        A5.    How long before your (husband's/wife's) death did you realize that (he/she) was going to die?  (RECORD NUMBER OR

MARK BOX)                                              

 

Code # (01-60), except:

┌──────────────┐

0 in 4206-4207├─────96.  NO WARNING/MINUTES

└──────────────┘

98.  DK

99.  NA

 

00.  Inap, 1 in 4132 or 4204

 

 

 

4206        A5.    TIME UNIT                                              

 

1.  HOURS

2.  DAYS

3.  WEEKS

4.  MONTHS

5.  YEARS

 

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 96 in 4205

 

 

 

 


 

 

4207        A6.    Was the cause of (his/her) death an ongoing condition that you knew about before, or did you only learn about it for

the first time shortly before (he/she) died?           

┌─────────┐

0 in 4208├─────────1.  ONGOING

└─────────┘

 2.  FIRST TIME

 

 8.  DK

 9.  NA

 

 0.  Inap, 1 in 4132 or 4204; 96 in 4205

 

 

 

4208        A7.    Did (he/she) have any serious ongoing health problems?

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 1 in 4207

 

 

 

4209        A8.    Was your (husband/wife) aware that (he/she) was dying?

 

  1.  YES

┌──────────────┐

0 in 4210-4212├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132 or 4204

 

 

 

4210        A9.    Did (he/she) seem to be at peace with the idea of dying?

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 5, 8-9 in 4209

 

 

 

 

 

 

 

 

 


 

 

4211        A10.   Did you and your (husband/wife) talk about the fact that

(he/she) might die?                                    

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 5, 8-9 in 4209

 

 

 

4212        A11.   Did you and (he/she) talk about how you would deal with

being on your own once (he/she) was gone?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 5, 8-9 in 4209

 

 

 

4213        A12.   INTERVIEWER CHECKPOINT                  

 

  1.  SPOUSE HAD (SERIOUS) ONGOING CONDITION

┌──────────────┐

0 in 4214-4224├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 4132 or 4204

 

 

 

4214        A13.   Did you yourself have to provide physical care to your

(husband/wife) in the 6 months before (he/she) died?   

 

  1.  YES

┌──────────────┐

0 in 4215-4224├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132 or 4204; 2 in 4213

 

 

 

 

 

 

 

 

 


 

 

 

4215        A13a.  During the last 6 months of (his/her) life, about how many hours a week did you spend providing physical care for

your (husband/wife)?                                   

 

Code HOURS (01-95)

 

95.  95 hours or more

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 

4216        A13b.  For how many weeks, months, or years did you provide such

care?--WEEKS                                           

 

Code WEEKS (00-95)

 

98.   DK

99.   NA

 

00.   WEEKS not given; Inap, 1 in 4132 or 4204; 2 in 4213;

                         5, 8-9 in 4214

 

 

 

4217        A13b.  For how many weeks, months, or years did you provide such

care?--MONTHS                                          

 

Code MONTHS (00-60)

 

98.   DK

99.   NA

 

00.   MONTHS not given; Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 

4218        A13b.  For how many weeks, months, or years did you provide such

care?--YEARS                                           

 

Code YEARS (00-20)

 

98.   DK

99.   NA

 

00.   YEARS not given; Inap, 1 in 4132 or 4204; 2 in 4213;

                         5, 8-9 in 4214

 

 

 


 

 

 

 

 

4219        A13c.  What kind of physical care did you provide?            

4220

4221               MEDICAL

 

11.   Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines

 

 

PERSONAL NEEDS (exc. 11)

 

21.   Elimination; helped with/took to bathroom; cleaned up after

22.   Bathing; gave baths; helped with bathing

23.   Feeding; fed spouse, prepared meals, etc.

24.   Help move around house; lifting; exercise/walking

25.   Getting dressed

 

 

 

 

29.   Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.

 

 

 

 

 

4219        A13c.  Continued                                              

4220

4221               31.   Transportation; took spouse to doctor or other appointment; "drove him everywhere"

 

 

 

┌────────────┐

Low Priority├─────95.   "Everything"; "complete care"

└────────────┘

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214;

      no further mention

 

 

 

 

 

 

 

 

 


 

 

 

 

 

4222        A14.   (RB, P. 1)  During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care?  Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not

at all stressful?                                      

 

1.  VERY STRESSFUL

2.  QUITE STRESSFUL

3.  SOMEWHAT STRESSFUL

4.  NOT TOO STRESSFUL

5.  NOT AT ALL STRESSFUL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 

4223        A15.   How much did caring for your (husband/wife) while (he/she) was ill keep you from carrying out other responsibilities in your life?  Would you say a great deal, somewhat, a

little, or not at all?                                 

 

1.  A GREAT DEAL

2.  SOMEWHAT

3.  A LITTLE

4.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 

4224        A16.   (RB, P. 2)  Please tell me how true the following statement is.  My (husband's/wife's) illness was physically painful for (him/her).  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 2 in 4213; 5, 8-9 in 4214

 

 

 


 

 

 

 

 

 

A17.   (RB, [STILL ON] P. 2)  Please tell me how true each of the following statements is in the case of your (husband/wife).

 

 

 

4225        A17a.  In the weeks before (his/her) death, things between my      (husband/wife) and me were going well.  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        USE SAME CODE 

3.  A LITTLE TRUE                        FOR V4226-4228

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204

 

 

 

 

4226        A17b.  My (husband/wife) lived a full life.                   

 

 

 

4227        A17c.  During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.   

 

 

4228        A17d.  I believe that my (husband/wife) is now in a better place

than (he/she) was on this earth.                       

 

 

4229        A18.   Were you there with your (husband/wife) at the moment when

(he/she) died?                                         

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204

 

 

 

 

 


 

 

 

 

 

 

 

 

 

 

4230        A19.   (RB, P. 3) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death?  Would you say no, not at all; yes, a little; yes, somewhat; or yes,

a great deal?                                          

┌──────────────┐

0 in 4231-4232├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132 or 4204

 

 

 

                                                               Rev. 11/2/90

4231        A19a.  What did (he/she) do that may have contributed to

4232               (his/her) death?                                       

 

11.   Smoking

12.   Alcohol/drug use

13.   Improper eating habits; wouldn't eat right foods/ follow diet

14.   Lack of exercise; just sat around

 

 

 

 

19.   Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.

 

 

21.   Emotional stress (self-induced or caused by others)

22.   Physical stress/overwork; worked too hard; "pushed himself too much"

23.   Employment situation--n.e.c.; dangerous/unhealthy working conditions

 

 

 

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 


00.   Inap, 1 in 4132 or 4204; 1, 8-9 in 4230; no further

      mention

 

 

 

 

 

 

 

 

 

 

4233        A20.   (RB, STILL ON P. 3) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death?  (Would you say no, not at all; yes, a

little; yes, somewhat; or yes, a great deal?)          

┌──────────────┐

0 in 4234-4241├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

              

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132 or 4204

 

 

 

4234(#1)    A20a.  Who do you feel may have contributed to the death?     

4238(#2)

Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

0 in 4239-4241├─────00.  No person #2 listed; Inap, 1 in 4132 or 4204; 1, 8-9

└──────────────┘       in 4233

 

 

 

                                                               Rev. 11/2/90

4235(#1)    A20b.  What did (PERSON #1) do?   

4236(#1)    A20d.  What did (PERSON #2) do?                               

 

4239(#2)

4240(#2)

 

 

21.   Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)

 

23.   Employment situation; dangerous/unhealthy working conditions

 

 

 

41.   Doctor/hospital incompetent/negligent/unhelpful

 

 


91.   Person shot/assaulted spouse (incl. in war)

 

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 4132 or 4204; 1, 8-9 in 4233; 00 in 4238;

      no further mention

 

 

 

4237(#1)    A20c.  (RB, STILL ON P. 3) Do you blame (PERSON #1) for your

4241(#2)           (husband's/wife's) death?

A20e.  (RB, STILL ON P. 3) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)                       

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOMEWHAT

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132 or 4204; 1, 8-9 in 4233; 00 in 4238

 


 

 

SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCES OF THE DEATH

 

 

VAR #

 

┌─────────────────────────────────────────┐

SPOUSE DIED BY ACCIDENT/ MURDER/ SUICIDE

└─────────────────────────────────────────┘

 

4301        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--MONTH                                

 

Code MONTH (01-12)

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132; 2 in 4204

 

 

 

4302        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--DAY                                  

 

Code DAY (01-31)

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132; 2 in 4204

 

 

 

4303        A21.   On what month, day and year did the (accident/murder/

suicide) happen?--YEAR                                 

 

Code YEAR (1987-1995)

 

9998.  DK

9999.  NA

 

0000.  Inap, 1 in 4132; 2 in 4204

 

 

 

4304        A22.   INTERVIEWER CHECKPOINT                  

 

  1.  CAUSE WAS ACCIDENT

┌──────────────┐

0 in 4305-4307├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 4132; 2 in 4204

 

 

 

 


 

 

4305        A22a.  Was anyone else involved in the accident?              

 

  1.  YES

┌──────────────┐

0 in 4306-4307├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204 or 4304

 

 

 

4306        A22b.  Who was that?  I don't need a specific name.           

4307

Use RELATIONSHIP MASTER CODE

 

00.   Inap, 1 in 4132; 2 in 4204 or 4304; 5, 8-9 in 4305;                    no further mention

 

 

 

4308        A23.   Was (he/she) still alive when you first heard about the

incident?                                              

 

  1.  YES

┌──────────────┐

0 in 4309-4314├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204

 

 

 

4309        A23a.  How long after that did (he/she) die?   

 

Code # (01-60), except:

 

98.  DK

99.  NA

 

00.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308

 

 

 

4310        A23a.  TIME UNIT                                              

 

1.  HOURS

2.  DAYS

3.  WEEKS

4.  MONTHS

 

9.  NA


0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308

 

 

 

 

4311        A24.   Was your (husband/wife) aware that (he/she) was dying? 

 

  1.  YES

┌──────────────┐

0 in 4312-4314├─────5.  NO

└──────────────┤

               ├─────8.  DON'T KNOW

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308

 

 

 

4312        A25.   Did (he/she) seem to be at peace with dying?           

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308 or 4311

 

 

 

4313        A26.   Did you and your (husband/wife) talk about the fact that

(he/she) might die?                                    

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308 or 4311

 

 

 

4314        A27.   Did you and (he/she) talk about how you would deal with

being on your own once (he/she) was gone?              

 

1.  YES

5.  NO

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4308 or 4311

 

 

 

 


 

 

 

 

 

 

 

 

4315        A28.   Before the (accident/murder/suicide) did your (husband/

wife) have any serious ongoing health problems?        

 

  1.  YES

┌──────────────┐

0 in 4316-4326├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204

 

 

 

4316        A29.   In the six months before (he/she) died, did you yourself have to provide physical care to (him/her) because of a

serious ongoing health problem?                        

 

  1.  YES

┌──────────────┐

0 in 4317-4326├─────5.  NO

└──────────────┤

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315

 

 

 

4317        A29a.  About how many hours a week did you spend providing physical care for (him/her) during the last six months of

(his/her) life?                                        

 

Code HOURS (01-95)

 

95.  95 hours or more

 

98.  DK

99.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316

 

 

 

4318        A29b.  For how many weeks, months, or years did you provide such

care?--WEEKS                                           

 

Code WEEKS (00-95)

 


98.   DK

99.   NA

 

00.   WEEKS not given; Inap, 1 in 4132; 2 in 4204; 5, 8-9

in 4315 or 4316

 

 

 

 

 

 

 

4319        A29b.  For how many weeks, months, or years did you provide such

care?--MONTHS                                          

 

Code MONTHS (00-60)

 

98.   DK

99.   NA

 

00.   MONTHS not given; Inap, 1 in 4132; 2 in 4204; 5, 8-9

in 4315 or 4316

 

 

 

4320        A29b.  For how many weeks, months, or years did you provide such

care?--YEARS                                           

 

Code YEARS (00-20)

 

98.   DK

99.   NA

 

00.   YEARS not given; Inap, 1 in 4132; 2 in 4204; 5, 8-9

in 4315 or 4316

 

 

 

4321        A29c.  What kind of physical care did you provide?            

4322

4323               MEDICAL

 

11.   Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines

 

 

 

 

 

 

 

 

 

 

PERSONAL NEEDS (exc. 11)

 

21.   Elimination; helped with/took to bathroom; cleaned up after


22.   Bathing; gave baths; helped with bathing

23.   Feeding; fed spouse, prepared meals, etc.

24.   Help move around house; lifting; exercise/walking

25.   Getting dressed

 

 

 

 

29.   Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.


4321        A29c.  Continued                                              

4322

4323               31.   Transportation; took spouse to doctor or other appointment; "drove him everywhere"

 

 

 

 

┌────────────┐

Low Priority├─────95.   "Everything"; "complete care"

└────────────┘

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316;                    no further mention

 

 

 

4324        A30.   (RB, P. 4)  During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care?  Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not

at all stressful?                                      

 

1.  VERY STRESSFUL

2.  QUITE STRESSFUL

3.  SOMEWHAT STRESSFUL

4.  NOT TOO STRESSFUL

5.  NOT AT ALL STRESSFUL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316

 

 

 

4325        A31.   How much did caring for your (husband/wife) during the 6 months before (he/she) died keep you from carrying out other responsibilities in your life?  Would you say

a great deal, somewhat, a little, or not at all?       

 

1.  A GREAT DEAL

2.  SOMEWHAT

3.  A LITTLE

4.  NOT AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316

 

 

 


 

 

4326        A32.   (RB, P. 5)  Please tell me how true the following statement is.  My (husband's/wife's) condition was physically painful for (him/her).  Is this very true,

somewhat, a little, or not true at all?                

 

1.  VERY TRUE

2.  SOMEWHAT TRUE

3.  A LITTLE TRUE

4.  NOT TRUE AT ALL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204; 5, 8-9 in 4315 or 4316

 

 

 

A33.   (RB, [STILL ON] P. 5)  Please tell me how true each of the following statements is in the case of your (husband/wife).

 

4327        A33a.  In the weeks before (his/her) death, things between my      (husband/wife) and me were going well.  Is this very true,

somewhat, a little, or not true at all?                

                                                                             

1.  VERY TRUE            ┌───────────────┐

2.  SOMEWHAT TRUE                        USE SAME CODE 

3.  A LITTLE TRUE                        FOR V4328-4330

4.  NOT TRUE AT ALL             └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204

 

 

 

4328        A33b.  My (husband/wife) lived a full life.                   

 

 

4329        A33c.  During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.   

 

 

4330        A33d.  I believe that my (husband/wife) is now in a better place

than (he/she) was on this earth.                       

 

 

 

4331        A34.   INTERVIEWER CHECKPOINT                  

 

1.  CAUSE OF DEATH WAS ACCIDENT OR MURDER

┌──────────────┐

0 in 4332-4334├─────2.  CAUSE WAS SUICIDE


└──────────────┘

0.  Inap, 1 in 4132; 2 in 4204

 

 

 

 

 

 

4332        A35.   (RB, P. 6) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death?  Would you say no, not at all; yes, a little; yes, somewhat; or yes,

a great deal?                                          

┌──────────────┐

0 in 4333-4334├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204 or 4331

 

 

 

 

4333        A35a.  What did (he/she) do that contributed to (his/her) death?

4334

11.   Smoking

12.   Alcohol/drug use

13.   Improper eating habits; wouldn't eat right foods/ follow diet

 

 

 

19.   Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.

 

 

21.   Emotional stress (self-induced or caused by others)

22.   Physical stress/overwork; worked too hard; "pushed himself too much"

23.   Employment situation--n.e.c.; dangerous/unhealthy working conditions

 

 

 

┌─────────┐

Make Card├────────97.   Other

└─────────┘

98.   DK

99.   NA

 

00.  Inap, 1 in 4132; 2 in 4204 or 4331; 1, 8-9 in 4332;                    no further mention

 

 

 

 


4335        A36.   INTERVIEWER CHECKPOINT                  

 

1.  CAUSE OF DEATH WAS ACCIDENT OR SUICIDE

┌──────────────┐

0 in 4336-4344├─────2.  CAUSE OF DEATH WAS MURDER

└──────────────┘

0.  Inap, 1 in 4132; 2 in 4204

 

 

4336        A37.   (RB, STILL ON P. 6) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death?  (Would you say no, not at all; yes, a

little; yes, somewhat; or yes, a great deal?)          

┌──────────────┐

0 in 4337-4344├─────1.  NO, NOT AT ALL

└──────────────┤

                    2.  YES, A LITTLE

                    3.  YES, SOMEWHAT

                    4.  YES, A GREAT DEAL

               

               ├─────8.  DK

               └─────9.  NA

 

  0.  Inap, 1 in 4132; 2 in 4204 or 4335

 

 

 

4337(#1)    A37a.  Who do you feel may have contributed to the death?     

4341(#2)

  Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

0 in 4342-4344├─────00.  No person #2 listed; Inap, 1 in 4132; 2 in 4204 or

└──────────────┘          4335;1, 8-9 in 4336

 

 

 

                                                               Rev. 11/2/90

4338(#1)    A37b.  What did (PERSON #1) do?   

4339(#1)    A37d.  What did (PERSON #2) do?                               

 

4342(#2)

4343(#2)           21.   Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)

 

23.   Employment situation; dangerous/unhealthy working conditions

 

 

 

41.   Doctor/hospital incompetent/negligent/unhelpful

 

 

 

 

91.   Person shot/assaulted spouse (incl. in war)

 

┌─────────┐

Make Card├────────97.   Other


└─────────┘

98.   DK

99.   NA

 

00.   Inap, 1 in 4132; 2 in 4204 or 4335; 1, 8-9 in 4336;

      00 in 4341; no further mention

 

 

 

 

 

 

4340(#1)    A37c.  (RB, STILL ON P. 6) Do you blame (PERSON #1) for your

4344(#2)           (husband's/wife's) death?

A37e.  (RB, STILL ON P. 6) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)                       

 

1.  NO, NOT AT ALL

2.  YES, A LITTLE

3.  YES, SOMEWHAT

4.  YES, A GREAT DEAL

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4204 or 4335; 1, 8-9 in 4336;

    00 in 4341

 

 


 

 

SECTION B:  GRIEF

 

 

VAR #

 

 

4401        B1.    INTERVIEWER CHECKPOINT                                 

 

  1.  SPOUSE HAD SERIOUS ONGOING CONDITION BEFORE (HE/SHE)

    DIED 

┌──────────────┐

0 in 4402-4406├─────2.  ALL OTHERS

└──────────────┘

  0.  Inap, 1 in 4132

 

 

 

B2.    (RB, P. 7) For the next questions, please think about the time when your (husband/wife) was alive but in poor health.

 

4402        B2a.   At any time while your (husband/wife) was still alive, did you ever find that you couldn't get thoughts of (him/her) or (his/her) condition out of your mind even when you wanted to?  Would you say no, never; yes, but rarely; yes,

sometimes; or yes, often?                              

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      USE SAME CODE 

3.  YES, SOMETIMES                       FOR V4403-4406

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

0.  Inap, 1 in 4132; 2 in 4401

 

 

 

4403        B2b.   Did you ever find yourself going over and over what was

happening?                                             

 

 

4404        B2c.   While (he/she) was still living, did you ever find yourself searching to make sense or find some meaning in

your (husband's/wife's) situation?                     

 

 

4405        B2d.   While (he/she) was still alive, did you ever have feelings of grief or sadness over the thought of losing your

(husband/wife)?                                        

 

 


4406        B2e.   Did you ever cry about what was happening to (him/her)?

 

 

 

 

 

B3.    (RB, [STILL ON] P. 7)  Now, I have a list of feelings and emotions that some people still experience many months after the loss of their husband or wife.  Please think about the past month.

 

4407        B3.    During the past month, have you felt afraid of what lies ahead for you? (Would you say no, never; yes, but rarely;

yes, sometimes; or yes, often)?                        

 

1.  NO, NEVER            ┌───────────────┐

2.  YES, BUT RARELY                      USE SAME CODE 

3.  YES, SOMETIMES                       FOR V4408-4429

4.  YES, OFTEN            └───────────────┘

 

8.  DK

9.  NA

 

 

 

4408        B4.    Have you felt extremely anxious and unsettled during the

past month?                                            

 

 

4409        B5.    During the past month, have you felt worried about how you

would manage your day-to-day affairs?                  

 

 

4410        B6.    Has life seemed empty?                                 

 

 

4411        B7.    During the past month, did you feel amazed at your

strength?                                              

 

 

4412        B8.    Did you feel you were coping well with the loss of your

(husband/wife)?                                        

 

 

4413        B9.    During the past month, did you feel proud of how well you

were managing?                                         

 

 

4414        B10.   Have you felt as though you were in a state of shock?  

 

 

4415        B11.   During the past month, have you felt as though you


couldn't believe what was happening?                   

 

 

4416        B12.   Have you felt emotionally numb?                        

 

 

4417        B13.   During the past month, have you felt resentful or bitter

about your (husband's/wife's) death?                   

 

 

4418        B14.   Have you felt that the death of your (husband/wife) was

unfair?                                                

 

 

4419        B15.   In the past month, have you felt anger toward God?     

 

 

4420        B16.   Have you felt empty inside, like an important part of you

is missing?                                            

 

 

4421        B17.   In the past month, have you felt that life has lost its

meaning?                                               

 

 

4422        B18.   In the last month, have you had any regrets about anything that happened between you and your (husband/wife) while

(he/she) was still alive?                              

 

 

4423        B19.   Have you felt as though you did all you could have done

for your (husband/wife) before (his/her) death?        

 

 

4424        B20.   During the past month, have you had any regrets about

things you did or failed to do while (he/she) was alive?     

 

 

4425        B21.   In the past month, have you heard a sound that you thought

might be (him/her)?                                    

 

 

4426        B22.   In the past month, have you sensed the presence of your

(husband/wife?)                                        

 

 

4427        B23.   To help you make decisions, have you thought about what

your (husband/wife) would have done?                   

 


4428        B24.   During the past month, have you felt drawn to places and

things that make you feel close to your (husband/wife)?

 

 

4429        B25.   Have you found yourself longing to have (him/her) with

you?                                                   

 

 

 

4430        B26.   (RB, STILL ON P. 7)  People have different reactions to the death of a husband or wife.  During the past month, have you had painful waves of missing your (husband/wife)?  (Would you say no, never; yes, but rarely; yes, sometimes;

or yes, often)?                                        

 

  1.  NO, NEVER

┌──────────────┐

0 in 4431-4432├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               ├─────4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 

 

4431        B26a.  (RB, STILL ON P. 7)  Has it happened in the last 6 months?--(no, never; yes, but rarely; yes, sometimes; or

yes, often)?                                           

 

 1.  NO, NEVER

┌─────────┐

0 in 4432├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          ├─────────4.  YES, OFTEN

         

          ├─────────8.  DK

          └─────────9.  NA

 

0.  Inap, 2-4, 8-9 in 4430

 

 

 

4432        B26b.  (RB, STILL ON P. 7)  At any time since (he/she) died, did you ever have painful waves of missing (him/her)--(no,

never; yes, but rarely; yes, sometimes; or yes, often)?

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA

 

0.  Inap, 2-4, 8-9 in 4430 or 4431

 


 

4433        B27.   (RB, STILL ON P. 7)  During the past month, have you experienced feelings of intense pain or grief over the loss of your (husband/wife)--(no, never; yes, but rarely;

yes, sometimes; or yes, often)?                        

 

  1.  NO, NEVER

┌──────────────┐

0 in 4434-4435├─────2.  YES, BUT RARELY

└──────────────┼─────3.  YES, SOMETIMES

               ├─────4.  YES, OFTEN

              

               ├─────8.  DK

               └─────9.  NA

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

4434        B27a.  (RB, STILL ON P. 7)  Has it happened in the last 6 months?--(no, never; yes, but rarely; yes, sometimes; or

yes, often)?                                           

 

 1.  NO, NEVER

┌─────────┐

0 in 4435├─────────2.  YES, BUT RARELY

└─────────┼─────────3.  YES, SOMETIMES

          ├─────────4.  YES, OFTEN

         

          ├─────────8.  DK

          └─────────9.  NA

 

0.  Inap, 2-4, 8-9 in 4433

 

 

 

4435        B27b.  (RB, STILL ON P. 7)  At any time since (he/she) died, did you ever experience feelings of intense pain or grief over (his/her) loss--(no,never; yes, but rarely; yes,

sometimes; or yes,often)?                              

 

1.  NO, NEVER

2.  YES, BUT RARELY

3.  YES, SOMETIMES

4.  YES, OFTEN

 

8.  DK

9.  NA


0.  Inap, 2-4, 8-9 in 4433 or 4434

 

 

 

4436        B28.   Since your (husband's/wife's) death, have you experienced feelings of grief in response to another loss -- for example, the loss of a friend, a distant relative or a pet

-- that were more intense than you might have expected?

 

  1.  YES

┌──────────────┐

0 in 4437-4438├─────5.  NO

└──────────────┤

               ├─────8.  IF VOLUNTEERED: NOT SURE